Phone within the US
1-(800)-637-0839Outside the US only
1-(609)-298-1035Address
The MDS Foundation
228 Park Ave S
PMB 118983
New York
NY 10003-1502
The MDS Foundation is a global nonprofit 501(c)(3) advocacy organization (EIN 22-3283911), supporting patients, families, and healthcare providers in the fields of MDS and related diseases for over 30 years.
© 2024 MDS Foundation. All rights reserved.
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One Voice Inspires, Many Voices Transform
Patient
i have been living fullfiled life untill I have not been diagnosed mds in December 2024. My personal fight and new challenges have started there finding out new disease unkown before MDS. I have started first cycle of Azacitidine 3 weeks ago and so far my overal heath has been declining. MDS is very challenging disease and I would like to share personall and other people experience in order to improve life balance and health!
Your story matters. If you'd like to contribute your experience with MDS and inspire others in our community, we invite you to share. Your voice can make a meaningful impact and offer support to those on a similar journey.
Discover genuine accounts from individuals navigating MDS. These stories reflect the real challenges and strengths within our community.

Patient
For many years, I’ve struggled with fatigue, but I always chalked it up to being a busy mom with young children. It wasn’t until later that I realized this exhaustion was part of something much bigger…
Caregiver
My father has MDS, and i would like to help him as much as possible.,he is 68 years old.

Patient
I was initially diagnosed with MDS in 2014 after a bone marrow biopsy, although prior blood tests indicate that the start predated this date. Two follow-up BMBs confirmed the diagnosis. My classificat…