Join the Fight Against MDS

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Voices of MDS

Share Your MDS Story

One Voice Inspires, Many Voices Transform

JP's Story

Patient

In April 2024, while vacationing with my wife and daughter in Norway, I received a life-changing call from my hematologist-oncologist at MGH: I had been diagnosed with MDS. Having faced Non-Hodgkin’s Lymphoma as a teenager, this was my greatest fear coming back to life. I returned home unsure if I wanted to go through the ordeal of chemo and a transplant, hoping instead that medication might let me hold on long enough to see my daughter graduate. But after speaking with my doctors, I realized the situation was far more serious, without a transplant, I had a matter of months or just a couple of years.

 

I began oral chemotherapy and moved through conditioning therapy toward my bone marrow transplant. It was an incredibly tough road, but deeply meaningful. Now, eight or nine months post-transplant, I feel as strong, if not stronger than before. I’ve continued running my business through it all and now serve as a patient advocate at MGH. As a two-time cancer survivor, I’ve gained a renewed outlook on life, and I’m grateful to share my story with others.

Share Your MDS Story

Your story matters. If you'd like to contribute your experience with MDS and inspire others in our community, we invite you to share. Your voice can make a meaningful impact and offer support to those on a similar journey.

The MDS Foundation proudly partners with the following organizations

MDS AllianceKnow AMLALANThe NHLBI Blood Health Network

Get in touch

Email

support@mds-foundation.org
hcp@mds-foundation.org

Phone within the US

1-(800)-637-0839

Outside the US only

1-(609)-298-1035

Address

The MDS Foundation
228 Park Ave S
PMB 118983
New York
NY 10003-1502

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The MDS Foundation is a global nonprofit 501(c)(3) advocacy organization (EIN 22-3283911), supporting patients, families, and healthcare providers in the fields of MDS and related diseases for over 30 years.

© 2024 MDS Foundation. All rights reserved.