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Share Your MDS Story
One Voice Inspires, Many Voices Transform

JP's Story
Patient
In April 2024, while vacationing with my wife and daughter in Norway, I received a life-changing call from my hematologist-oncologist at MGH: I had been diagnosed with MDS. Having faced Non-Hodgkin’s Lymphoma as a teenager, this was my greatest fear coming back to life. I returned home unsure if I wanted to go through the ordeal of chemo and a transplant, hoping instead that medication might let me hold on long enough to see my daughter graduate. But after speaking with my doctors, I realized the situation was far more serious, without a transplant, I had a matter of months or just a couple of years.
I began oral chemotherapy and moved through conditioning therapy toward my bone marrow transplant. It was an incredibly tough road, but deeply meaningful. Now, eight or nine months post-transplant, I feel as strong, if not stronger than before. I’ve continued running my business through it all and now serve as a patient advocate at MGH. As a two-time cancer survivor, I’ve gained a renewed outlook on life, and I’m grateful to share my story with others.
Read More MDS Stories
Discover genuine accounts from individuals navigating MDS. These stories reflect the real challenges and strengths within our community.
Lori's Story
Patient
Two years ago in September (2023) I became very ill. I went to Urgent Care with a bad cough and just feeling bad. They diagnosed me with Bronchitis and gave me a prescription and sent me on my way. …
Richard's Story
Patient
I have been diagnosed with MDS and am currently low-moderate risk.

Lindsay's Story
Professional
I am a physician at Thomas Jefferson University Hospital in Philadelphia, and I have dedicated my career to caring for patients with MDS and acute leukemia. As an MDS specialist, I have the privilege…
Share Your MDS Story
Your story matters. If you'd like to contribute your experience with MDS and inspire others in our community, we invite you to share. Your voice can make a meaningful impact and offer support to those on a similar journey.