Phone within the US
1-(800)-637-0839Outside the US only
1-(609)-298-1035Address
The MDS Foundation
228 Park Ave S
PMB 118983
New York
NY 10003-1502
The MDS Foundation is a global nonprofit 501(c)(3) advocacy organization (EIN 22-3283911), supporting patients, families, and healthcare providers in the fields of MDS and related diseases for over 30 years.
© 2024 MDS Foundation. All rights reserved.
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One Voice Inspires, Many Voices Transform
Patient
I am 76 living with MDS.I also have other medical issues. I was told Over a period of time I was Anemic. I wanted to find out why! Thats when they found MDS. My mother’s mother was 80 when she was diagnosed with lucemia and my symptoms were the same. I am very tired and cold!!!
Your story matters. If you'd like to contribute your experience with MDS and inspire others in our community, we invite you to share. Your voice can make a meaningful impact and offer support to those on a similar journey.
Discover genuine accounts from individuals navigating MDS. These stories reflect the real challenges and strengths within our community.
Patient
In late 2020, my primary care doctor noticed that my platelet counts were a little under normal. At a following check-up, they decreased again. He sent be to a hematologist-oncologist who sent me for …
Patient
Bruising was the first visual sign, and next was extreme fatigue. Just not feeling my normal self. Bone marrow test revealed MDS with 5Q minus syndrome. I turned 70 in February of this 2025, and di…
Patient
recently dia