Phone within the US
1-(800)-637-0839Outside the US only
1-(609)-298-1035Address
The MDS Foundation
228 Park Ave S
PMB 118983
New York
NY 10003-1502
The MDS Foundation is a global nonprofit 501(c)(3) advocacy organization (EIN 22-3283911), supporting patients, families, and healthcare providers in the fields of MDS and related diseases for over 30 years.
© 2024 MDS Foundation. All rights reserved.
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One Voice Inspires, Many Voices Transform
Patient
I am newly diagnosed with MDS. My platelet count has been low since March of this year. I had a bone marrow biopsy which indicated scarring of the marrow. I am a double lung transplant. My 8th lungaversary will happen on February 4, 2026. I believe because of my low immune condition, it will progress to Leukemia. I am under the care of an excellent Hematologist/Oncologist.
Your story matters. If you'd like to contribute your experience with MDS and inspire others in our community, we invite you to share. Your voice can make a meaningful impact and offer support to those on a similar journey.
Discover genuine accounts from individuals navigating MDS. These stories reflect the real challenges and strengths within our community.
Patient
I am in the top 1% according to my breast cancer oncologist. Apparently 1% of patients do develop MDS from the Chemotherapy my Oncologist prescribed. Although He said he had never had a cancer patien…
Patient
In 2021 my internist, who I have been seeing for 15 years, suggested that I see a hematologist because he was concerned about my low RBCs. He referred me to Dr Raphael at NYU Perlmutter. At the time I…