The MDS Foundation proudly partners with the following organizations
The MDS Foundation proudly partners with the following organizations
Phone within the US
1-(800)-637-0839Outside the US only
1-(609)-298-1035Address
The MDS Foundation
228 Park Ave S
PMB 118983
New York
NY 10003-1502
The MDS Foundation is a global nonprofit 501(c)(3) advocacy organization (EIN 22-3283911), supporting patients, families, and healthcare providers in the fields of MDS and related diseases for over 30 years.
© 2024 MDS Foundation. All rights reserved.
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One Voice Inspires, Many Voices Transform
Patient
i was sent to a hemotologist after a routine cbc test from my primary care doctor back in 2015 because my platelets were iver 600. i was placed on hydroxyurea and took it for 7 years with different dosages as my platelets went up and down. finally in 2023 i had a bone marrow aspiration and was ultimately diagnosed with MDS, apparently due to the hydroxyurea. platelets remain close to 2 million and red and white cells remain within range but i flip flop with anemia. i only recently got access to my records and read that in 2024 my dr noted a 6 year life expectancy. thats scary and why i joined this group.
Your story matters. If you'd like to contribute your experience with MDS and inspire others in our community, we invite you to share. Your voice can make a meaningful impact and offer support to those on a similar journey.
Discover genuine accounts from individuals navigating MDS. These stories reflect the real challenges and strengths within our community.
Patient
I am in the top 1% according to my breast cancer oncologist. Apparently 1% of patients do develop MDS from the Chemotherapy my Oncologist prescribed. Although He said he had never had a cancer patien…
Patient
Hello, I'm Tom (Tommy to my family and close friends). I am 76 (soon to be 77) years old.
My journey to MDS? It was noted in 2019 that a number of my CBC counts were low. My primary care doctor sugge…
Caregiver
My mother's MDS diagnosis was a shock to everyone. After having her annual blood work, her doctor called her into the office for a chat. She told her MD not to say she was sick because she felt too go…
