The MDS Foundation proudly partners with the following organizations
The MDS Foundation proudly partners with the following organizations
Phone within the US
1-(800)-637-0839Outside the US only
1-(609)-298-1035Address
The MDS Foundation
228 Park Ave S
PMB 118983
New York
NY 10003-1502
The MDS Foundation is a global nonprofit 501(c)(3) advocacy organization (EIN 22-3283911), supporting patients, families, and healthcare providers in the fields of MDS and related diseases for over 30 years.
© 2024 MDS Foundation. All rights reserved.
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One Voice Inspires, Many Voices Transform
Patient
Bruising was the first visual sign, and next was extreme fatigue. Just not feeling my normal self. Bone marrow test revealed MDS with 5Q minus syndrome. I turned 70 in February of this 2025, and diagnosed with MDS one month later. So far, we are keeping close tabs on my hemoglobin levels. I feel it waxs and wans because I will have good days and then bad days. So far, we are not doing any medication because hemoglobin level increased from 9.2 to 10.2 somehow I don’t know. Anyway, we are not doing anything at this point. My family doctor started me on Remeron because I was having difficulty sleeping, causing me to be irritable and more fatigued. The more I’m learning the more I know that it’s rare and not much as known. I’d be interested in learning more through the foundation and with other patients.
Your story matters. If you'd like to contribute your experience with MDS and inspire others in our community, we invite you to share. Your voice can make a meaningful impact and offer support to those on a similar journey.
Discover genuine accounts from individuals navigating MDS. These stories reflect the real challenges and strengths within our community.
Patient
In April 2024, while vacationing with my wife and daughter in Norway, I received a life-changing call from my hematologist-oncologist at MGH: I had been diagnosed with MDS. Having faced Non-Hodgkin’s …
Patient
I wanted to rejoice in the Lord and testify to the power of prayer, healing, and deliverance - and God directing my Doctors and path.
In August of 2019, I was diagnosed with Myelodysplastic Syndrome (M…
Professional
I am a physician at Thomas Jefferson University Hospital in Philadelphia, and I have dedicated my career to caring for patients with MDS and acute leukemia. As an MDS specialist, I have the privilege…
