The MDS Foundation proudly partners with the following organizations
The MDS Foundation proudly partners with the following organizations
Phone within the US
1-(800)-637-0839Outside the US only
1-(609)-298-1035Address
The MDS Foundation
228 Park Ave S
PMB 118983
New York
NY 10003-1502
The MDS Foundation is a global nonprofit 501(c)(3) advocacy organization (EIN 22-3283911), supporting patients, families, and healthcare providers in the fields of MDS and related diseases for over 30 years.
© 2024 MDS Foundation. All rights reserved.
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One Voice Inspires, Many Voices Transform
Patient
I was sent to a hemotologist because of routine blood tests showing low WBC and low platelets. Since then I have had a bone marrow biopsy and diagnosed with low risk MDS, bilineage cyopenia and blast cells of 2.9%. Also, 3 acquired mutationed genes. I was told that we would monitor my blood. I wanted to look for others that have also been diagnosed with this and hopefully learn more about MDS.
Your story matters. If you'd like to contribute your experience with MDS and inspire others in our community, we invite you to share. Your voice can make a meaningful impact and offer support to those on a similar journey.
Discover genuine accounts from individuals navigating MDS. These stories reflect the real challenges and strengths within our community.
Patient
I am 76 living with MDS.I also have other medical issues. I was told Over a period of time I was Anemic. I wanted to find out why! Thats when they found MDS. My mother’s mother was 80 when she was…
Patient
ive been diagnosed with MDS, 2019, and have 5q deletion, had breast cancer 16 years ago.
was on Revlimid for 5 years but it recently stopped working, was great for the 5 years...then hemoglobin startie…
Patient
In 2021 my internist, who I have been seeing for 15 years, suggested that I see a hematologist because he was concerned about my low RBCs. He referred me to Dr Raphael at NYU Perlmutter. At the time I…
