Phone within the US
1-(800)-637-0839Outside the US only
1-(609)-298-1035Address
The MDS Foundation
228 Park Ave S
PMB 118983
New York
NY 10003-1502
The MDS Foundation is a global nonprofit 501(c)(3) advocacy organization (EIN 22-3283911), supporting patients, families, and healthcare providers in the fields of MDS and related diseases for over 30 years.
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One Voice Inspires, Many Voices Transform
Patient
I was sent to a hemotologist because of routine blood tests showing low WBC and low platelets. Since then I have had a bone marrow biopsy and diagnosed with low risk MDS, bilineage cyopenia and blast cells of 2.9%. Also, 3 acquired mutationed genes. I was told that we would monitor my blood. I wanted to look for others that have also been diagnosed with this and hopefully learn more about MDS.
Your story matters. If you'd like to contribute your experience with MDS and inspire others in our community, we invite you to share. Your voice can make a meaningful impact and offer support to those on a similar journey.
Discover genuine accounts from individuals navigating MDS. These stories reflect the real challenges and strengths within our community.
Caregiver
My father has MDS, and i would like to help him as much as possible.,he is 68 years old.

Patient
I wanted to rejoice in the Lord and testify to the power of prayer, healing, and deliverance - and God directing my Doctors and path.
In August of 2019, I was diagnosed with Myelodysplastic Syndrome (M…
Caregiver
I just want a place to exchange and share information on my husband's condition and the best resources that are out there. We are interested in alternative therapies. Currently using lots of vitamins…