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myMDS Resources – Supporting You on Your MDS Journey
We know that navigating MDS-related anemia can feel overwhelming, and finding clear, reliable information is crucial. That’s why we’re excited to introduce myMDS, a set of resources designed to help you better understand MDS and feel more confident in conversations with your healthcare team.
myMDS: Understanding and Navigating the MDS Journey (Full Guide)
An easy-to-understand, gardening-themed guide that helps people with lower-risk MDS understand their diagnosis, test results, and treatment options. This resource explains key concepts and includes a glossary to support learning and discussion with healthcare providers.
myMDS: Companion Question Guide for Conversations With Your Doctor
A companion question guide designed to support meaningful conversations with your healthcare team at every step of the MDS journey. This tool helps you ask the right questions about symptoms, diagnosis, test results, treatment planning, and ongoing monitoring.
Why These Resources Matter
- Get clear, reliable explanations about MDS-related anemia
- Feel more prepared when speaking with your doctor
- Empower yourself and others with knowledge that makes a difference
Both resources have been developed in collaboration with leading advocacy organizations, with support from Bristol Myers Squibb (BMS), to ensure they meet the needs of patients, caregivers, and families affected by MDS.
Downloads
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Our Supporters
Thank you to Bristol-Myers Squibb for supporting this initiative.
