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Phone within the US
1-(800)-637-0839Outside the US only
1-609-298-1035Address
The MDS Foundation
228 Park Ave S
PMB 118983
New York
NY 10003-1502
The MDS Foundation is a global nonprofit 501(c)(3) advocacy organization (EIN 22-3283911), supporting patients, families, and healthcare providers in the fields of MDS and related diseases for over 30 years.
© 2024 MDS Foundation. All rights reserved.
One Voice Inspires, Many Voices Transform
Caregiver
I just want a place to exchange and share information on my husband's condition and the best resources that are out there. We are interested in alternative therapies. Currently using lots of vitamins like Turkey tail , zinc etc. papaya leaf extract , red light therapy Mini moxibustion.
Would also like to locate a holistic dr.
Discover genuine accounts from individuals navigating MDS. These stories reflect the real challenges and strengths within our community.

Patient
Hello all, I’m gonna get down to the nitty-gritty first. Feb. 26, 2025 I was diagnosed with myelodysplastic syndrome MDS with SF3B1, SRSF2, CSF3R, and SETBP1 mutations identified. But unfortunately it…
Patient
I am a retired teacher, married ,75 years old. I am recently diagnoised and just trying to learn to navigate through my MDS diagnoises. i look forward to having a network of future friends.

Patient
My name is Rebecca (Becky) Duncan and I am a myelodysplastic syndrome survivor.
The following is part of the report that was given to Dr. Cynthia Rutherford, from the lab, at 2:20pm on December 20, 20…
Your story matters. If you'd like to contribute your experience with MDS and inspire others in our community, we invite you to share. Your voice can make a meaningful impact and offer support to those on a similar journey.