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Phone within the US
1-(800)-637-0839Outside the US only
1-609-298-1035Address
The MDS Foundation
228 Park Ave S
PMB 118983
New York
NY 10003-1502
The MDS Foundation is a global nonprofit 501(c)(3) advocacy organization (EIN 22-3283911), supporting patients, families, and healthcare providers in the fields of MDS and related diseases for over 30 years.
© 2024 MDS Foundation. All rights reserved.
One Voice Inspires, Many Voices Transform
Patient
I'll do this later
Discover genuine accounts from individuals navigating MDS. These stories reflect the real challenges and strengths within our community.

Patient
My name is Mercedes. I’m 58 years old and I’m a retired Certified Nurse Midwife & former Army nurse. I had fatigue for no apparent reason starting in 2016 that just kept getting worse …I had physic…
Patient
I wanted to write this so that people know there is a cure and with the cure there is hope for people who suffer from MDS.
In January 2024 at the age of 67 I was diagnosed with MDS. My hemoglobin was 8…
Patient
I was diagnosed with MDS ring sideroblasts in 2018. I was on Procrit for two
years and then Luspatercept for two years. my hemoglobin dropped to 7.8
and had my first transfusion on August 1, 2025. I wi…
Your story matters. If you'd like to contribute your experience with MDS and inspire others in our community, we invite you to share. Your voice can make a meaningful impact and offer support to those on a similar journey.