The MDS Foundation proudly partners with the following organizations
Every gift helps patients, caregivers, and healthcare professionals access life-saving resources, support, and education. Together, we can make a difference. Even a small contribution can create a big impact. Thank you for your generosity.
The MDS Foundation proudly partners with the following organizations
Phone within the US
1-(800)-637-0839Outside the US only
1-609-298-1035Address
The MDS Foundation
228 Park Ave S
PMB 118983
New York
NY 10003-1502
The MDS Foundation is a global nonprofit 501(c)(3) advocacy organization (EIN 22-3283911), supporting patients, families, and healthcare providers in the fields of MDS and related diseases for over 30 years.
© 2024 MDS Foundation. All rights reserved.
One Voice Inspires, Many Voices Transform
Patient
My MDS story started in early 2025, after routine bloodwork my primary was concerned that my counts were trending low so he sent me to a local hematoligist who did a series or tests and after being referred to memorial Sloan Kettering and more testing I was diagnosed with MDS in March of 2025. i was given a few rounds of Vidaza chemo and many transfusions then it was determined a bone marrow transplant was necessary. My emotions were up and down and MSK was right by my side. In July of 2025, I received my transplant at MSK and I am forever grateful for my unknown donor and my MSK team. Recovery was tough but almost 6 months later I finally feel stronger and feel like my old self. Anyone who is starting this journey, keep a positive attitude and a strong mind and body mindset. You will get thru this and your doctors, nurses, support team will be with you every step of the was.
Discover genuine accounts from individuals navigating MDS. These stories reflect the real challenges and strengths within our community.
Patient
My MDS experience is not all that remarkable. But what is noteworthy has been my approach to treatment.
From the beginning, I decided to take a very assertive and proactive approach to everything; fro…
Patient
Hello, I'm Tom (Tommy to my family and close friends). I am 76 (soon to be 77) years old.
My journey to MDS? It was noted in 2019 that a number of my CBC counts were low. My primary care doctor sugge…
Patient
James Williams
MDS Survivor, MDS Foundation Board of Directors, Development Advisory Board & Finance Committee Member
My journey with myelodysplastic syndromes (MDS) began in early 2017 with unexplained…
Your story matters. If you'd like to contribute your experience with MDS and inspire others in our community, we invite you to share. Your voice can make a meaningful impact and offer support to those on a similar journey.