The MDS Foundation proudly partners with the following organizations
Every gift helps patients, caregivers, and healthcare professionals access life-saving resources, support, and education. Together, we can make a difference. Even a small contribution can create a big impact. Thank you for your generosity.
The MDS Foundation proudly partners with the following organizations
Phone within the US
1-(800)-637-0839Outside the US only
1-609-298-1035Address
The MDS Foundation
228 Park Ave S
PMB 118983
New York
NY 10003-1502
The MDS Foundation is a global nonprofit 501(c)(3) advocacy organization (EIN 22-3283911), supporting patients, families, and healthcare providers in the fields of MDS and related diseases for over 30 years.
© 2024 MDS Foundation. All rights reserved.
One Voice Inspires, Many Voices Transform
Caregiver
My dad was an athlete, a family man, and a man of faith. He played hockey and ran road races well into his 70s, and he lived every day with generosity and humor. In his later 70s, he was diagnosed with MDS. He faced countless transfusions, needles, and treatments, yet he never lost his positivity or his ability to make others laugh—even in his final days. He kept fighting because he didn’t want to leave us, and he worried most about Mom. We miss him deeply, but we carry his spirit with us. On October 24, our city will light up four municipal areas in red for MDS Awareness Day—a symbol that not only raises awareness, but also honors his life, his fight, and the love he gave so freely. And while the official day falls on October 25—the same day we lost him—it carries a double meaning for us, reminding us not only of the importance of awareness but also of the incredible man he was.
Your story matters. If you'd like to contribute your experience with MDS and inspire others in our community, we invite you to share. Your voice can make a meaningful impact and offer support to those on a similar journey.
Discover genuine accounts from individuals navigating MDS. These stories reflect the real challenges and strengths within our community.
Patient
In April 2024, while vacationing with my wife and daughter in Norway, I received a life-changing call from my hematologist-oncologist at MGH: I had been diagnosed with MDS. Having faced Non-Hodgkin’s …
Patient
My name is Rebecca (Becky) Duncan and I am a myelodysplastic syndrome survivor.
The following is part of the report that was given to Dr. Cynthia Rutherford, from the lab, at 2:20pm on December 20, 20…
Patient Advocate
Starting out, I thought I knew what I wanted and where I wanted to be. However, life has a way of shaping, or in my case, reshaping, your path as you walk it. From the time I was young, I felt called …