The MDS Foundation proudly partners with the following organizations
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The MDS Foundation proudly partners with the following organizations
Phone within the US
1-(800)-637-0839Outside the US only
1-609-298-1035Address
The MDS Foundation
228 Park Ave S
PMB 118983
New York
NY 10003-1502
The MDS Foundation is a global nonprofit 501(c)(3) advocacy organization (EIN 22-3283911), supporting patients, families, and healthcare providers in the fields of MDS and related diseases for over 30 years.
© 2024 MDS Foundation. All rights reserved.
One Voice Inspires, Many Voices Transform
Patient
I am a 77 year old male ( almost 78) and was diagnosed with MDS with rings and a 5q variant. I had received a transfusion for a colon operation last August. The operation went well, and I recovered but was then told to see a Hemotologist/Oncologist, and was diagnosed with MDS. I tried all treatments including 5-6 weeks of Vidaza. Nothing has worked and I am currently transfusion dependent. I was recently reading about Ojjaara, and was wondering? Or any other suggestions would be appreciated. I am wary of a Stem Cell Transplant at my age. Any thoughts about Ojjaara or anything else?
Discover genuine accounts from individuals navigating MDS. These stories reflect the real challenges and strengths within our community.
Patient
I was diagnosed in October of 2022, a year after I fainted at my son’s soccer game, creating some sideline drama. It was “out of the blue.” Doctors ran all the expected neurological and cardiac tests,…
Caregiver
My mother's MDS diagnosis was a shock to everyone. After having her annual blood work, her doctor called her into the office for a chat. She told her MD not to say she was sick because she felt too go…
Patient
Hello, I'm Tom (Tommy to my family and close friends). I am 76 (soon to be 77) years old.
My journey to MDS? It was noted in 2019 that a number of my CBC counts were low. My primary care doctor sugge…
Your story matters. If you'd like to contribute your experience with MDS and inspire others in our community, we invite you to share. Your voice can make a meaningful impact and offer support to those on a similar journey.