The MDS Foundation proudly partners with the following organizations
Every gift helps patients, caregivers, and healthcare professionals access life-saving resources, support, and education. Together, we can make a difference. Even a small contribution can create a big impact. Thank you for your generosity.
The MDS Foundation proudly partners with the following organizations
Phone within the US
1-(800)-637-0839Outside the US only
1-609-298-1035Address
The MDS Foundation
228 Park Ave S
PMB 118983
New York
NY 10003-1502
The MDS Foundation is a global nonprofit 501(c)(3) advocacy organization (EIN 22-3283911), supporting patients, families, and healthcare providers in the fields of MDS and related diseases for over 30 years.
© 2024 MDS Foundation. All rights reserved.
One Voice Inspires, Many Voices Transform
Patient
I now take 700mg quinine daily. Platelets dropping. At this dose, my plaelet count drops about 100 points a week [7 days]. I have to drop from 950 to 300. That'll take 6-7 weeks. Don't exceed the 700mg dose. Take the liquid tinture. Do your own research regarding quinine side effects.
Itching abating, red blotches disappering. No longer look like someone who fell into a poison ivy patch "nakit." ... quinine is the ticket.
Discover genuine accounts from individuals navigating MDS. These stories reflect the real challenges and strengths within our community.
Patient
My MDS Journey
Started in 2000 – when my family doctor noticed that my HGB was going down slightly during my yearly physical. After this occurred three years in a row, he referred me to a local Hemato…
Patient
In March 2024 I went to give blood (which I have been doing regularly for the last 35 years). I was told that my Hb was a bit low so had a FBC which showed a pancytopaenia (low Hb, White cells and pla…
Caregiver
I just want a place to exchange and share information on my husband's condition and the best resources that are out there. We are interested in alternative therapies. Currently using lots of vitamins…
Your story matters. If you'd like to contribute your experience with MDS and inspire others in our community, we invite you to share. Your voice can make a meaningful impact and offer support to those on a similar journey.