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Phone within the US
1-(800)-637-0839Outside the US only
1-609-298-1035Address
The MDS Foundation
228 Park Ave S
PMB 118983
New York
NY 10003-1502
The MDS Foundation is a global nonprofit 501(c)(3) advocacy organization (EIN 22-3283911), supporting patients, families, and healthcare providers in the fields of MDS and related diseases for over 30 years.
© 2024 MDS Foundation. All rights reserved.
One Voice Inspires, Many Voices Transform
Patient
I am a retired teacher, married ,75 years old. I am recently diagnoised and just trying to learn to navigate through my MDS diagnoises. i look forward to having a network of future friends.
Discover genuine accounts from individuals navigating MDS. These stories reflect the real challenges and strengths within our community.
Patient
My MDS story started in early 2025, after routine bloodwork my primary was concerned that my counts were trending low so he sent me to a local hematoligist who did a series or tests and after being re…

Patient
ive been diagnosed with MDS, 2019, and have 5q deletion, had breast cancer 16 years ago.
was on Revlimid for 5 years but it recently stopped working, was great for the 5 years...then hemoglobin startie…
Patient
I was surprised when my general practicioner left me a message saying he wanted to speak with me. When we did speak, he said it looked like I was anemic - he ordered another blood testvto confitm. Sur…
Your story matters. If you'd like to contribute your experience with MDS and inspire others in our community, we invite you to share. Your voice can make a meaningful impact and offer support to those on a similar journey.