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Phone within the US
1-(800)-637-0839Outside the US only
1-609-298-1035Address
The MDS Foundation
228 Park Ave S
PMB 118983
New York
NY 10003-1502
The MDS Foundation is a global nonprofit 501(c)(3) advocacy organization (EIN 22-3283911), supporting patients, families, and healthcare providers in the fields of MDS and related diseases for over 30 years.
© 2024 MDS Foundation. All rights reserved.
One Voice Inspires, Many Voices Transform
Patient
I am 76 living with MDS.I also have other medical issues. I was told Over a period of time I was Anemic. I wanted to find out why! Thats when they found MDS. My mother’s mother was 80 when she was diagnosed with lucemia and my symptoms were the same. I am very tired and cold!!!
Discover genuine accounts from individuals navigating MDS. These stories reflect the real challenges and strengths within our community.
Patient
i was sent to a hemotologist after a routine cbc test from my primary care doctor back in 2015 because my platelets were iver 600. i was placed on hydroxyurea and took it for 7 years with different …

Patient
Hello all, I’m gonna get down to the nitty-gritty first. Feb. 26, 2025 I was diagnosed with myelodysplastic syndrome MDS with SF3B1, SRSF2, CSF3R, and SETBP1 mutations identified. But unfortunately it…

Patient Advocate
There are moments in life that, quite literally, change you. They take your breath away, cause you to take a hard look at your life, how you are living, and force you to make a choice- to allow the t…
Your story matters. If you'd like to contribute your experience with MDS and inspire others in our community, we invite you to share. Your voice can make a meaningful impact and offer support to those on a similar journey.