The MDS Foundation proudly partners with the following organizations
Every gift helps patients, caregivers, and healthcare professionals access life-saving resources, support, and education. Together, we can make a difference. Even a small contribution can create a big impact. Thank you for your generosity.
The MDS Foundation proudly partners with the following organizations
Phone within the US
1-(800)-637-0839Outside the US only
1-609-298-1035Address
The MDS Foundation
228 Park Ave S
PMB 118983
New York
NY 10003-1502
The MDS Foundation is a global nonprofit 501(c)(3) advocacy organization (EIN 22-3283911), supporting patients, families, and healthcare providers in the fields of MDS and related diseases for over 30 years.
© 2024 MDS Foundation. All rights reserved.
One Voice Inspires, Many Voices Transform
Patient
I am newly diagnosed with MDS. My platelet count has been low since March of this year. I had a bone marrow biopsy which indicated scarring of the marrow. I am a double lung transplant. My 8th lungaversary will happen on February 4, 2026. I believe because of my low immune condition, it will progress to Leukemia. I am under the care of an excellent Hematologist/Oncologist.
Discover genuine accounts from individuals navigating MDS. These stories reflect the real challenges and strengths within our community.
Patient
I wanted to write this so that people know there is a cure and with the cure there is hope for people who suffer from MDS.
In January 2024 at the age of 67 I was diagnosed with MDS. My hemoglobin was 8…
Caregiver
My 83 year old father has been failing since May 2025. He has always had low anemia however in the past few weeks he was diagnosed with MDS. He is losing so much weight and is very fragile. He is get…
Patient
In March 2024 I went to give blood (which I have been doing regularly for the last 35 years). I was told that my Hb was a bit low so had a FBC which showed a pancytopaenia (low Hb, White cells and pla…
Your story matters. If you'd like to contribute your experience with MDS and inspire others in our community, we invite you to share. Your voice can make a meaningful impact and offer support to those on a similar journey.