The MDS Foundation proudly partners with the following organizations
Every gift helps patients, caregivers, and healthcare professionals access life-saving resources, support, and education. Together, we can make a difference. Even a small contribution can create a big impact. Thank you for your generosity.
The MDS Foundation proudly partners with the following organizations
Phone within the US
1-(800)-637-0839Outside the US only
1-609-298-1035Address
The MDS Foundation
228 Park Ave S
PMB 118983
New York
NY 10003-1502
The MDS Foundation is a global nonprofit 501(c)(3) advocacy organization (EIN 22-3283911), supporting patients, families, and healthcare providers in the fields of MDS and related diseases for over 30 years.
© 2024 MDS Foundation. All rights reserved.
One Voice Inspires, Many Voices Transform
Patient
i was sent to a hemotologist after a routine cbc test from my primary care doctor back in 2015 because my platelets were iver 600. i was placed on hydroxyurea and took it for 7 years with different dosages as my platelets went up and down. finally in 2023 i had a bone marrow aspiration and was ultimately diagnosed with MDS, apparently due to the hydroxyurea. platelets remain close to 2 million and red and white cells remain within range but i flip flop with anemia. i only recently got access to my records and read that in 2024 my dr noted a 6 year life expectancy. thats scary and why i joined this group.
Discover genuine accounts from individuals navigating MDS. These stories reflect the real challenges and strengths within our community.
Patient
I've just been diagnosed with MDS. This became apparent when I suffered a fall resulting in fracture of my shoulder which caused a massive bruise/ internal bleed. i was very breathless and ended up be…
Patient
My name is Rebecca (Becky) Duncan and I am a myelodysplastic syndrome survivor.
The following is part of the report that was given to Dr. Cynthia Rutherford, from the lab, at 2:20pm on December 20, 20…
Patient
In April 2024, while vacationing with my wife and daughter in Norway, I received a life-changing call from my hematologist-oncologist at MGH: I had been diagnosed with MDS. Having faced Non-Hodgkin’s …
Your story matters. If you'd like to contribute your experience with MDS and inspire others in our community, we invite you to share. Your voice can make a meaningful impact and offer support to those on a similar journey.