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Phone within the US
1-(800)-637-0839Outside the US only
1-609-298-1035Address
The MDS Foundation
228 Park Ave S
PMB 118983
New York
NY 10003-1502
The MDS Foundation is a global nonprofit 501(c)(3) advocacy organization (EIN 22-3283911), supporting patients, families, and healthcare providers in the fields of MDS and related diseases for over 30 years.
© 2024 MDS Foundation. All rights reserved.
One Voice Inspires, Many Voices Transform

Professional
I am a physician at Thomas Jefferson University Hospital in Philadelphia, and I have dedicated my career to caring for patients with MDS and acute leukemia. As an MDS specialist, I have the privilege of guiding patients and families through the complex and emotionally challenging process of MDS diagnosis, prognosis, and treatment. I am there to celebrate the victories and mourn the losses, and it is an honor to be entrusted with such a responsibility. At the same time, I am also a researcher who develops and implements clinical trials with the goal of improving treatments and reducing the burdens of MDS. The MDS Foundation is such an important resource for patients, caregivers, and providers as it brings us together as a community with the united goal of improving the lives of those affected by MDS.
Discover genuine accounts from individuals navigating MDS. These stories reflect the real challenges and strengths within our community.
Patient
I was sent to a hemotologist because of routine blood tests showing low WBC and low platelets. Since then I have had a bone marrow biopsy and diagnosed with low risk MDS, bilineage cyopenia and blast…

Patient
Hello all, I’m gonna get down to the nitty-gritty first. Feb. 26, 2025 I was diagnosed with myelodysplastic syndrome MDS with SF3B1, SRSF2, CSF3R, and SETBP1 mutations identified. But unfortunately it…

Patient Advocate
My journey into fundraising for cancer organizations began when my grandfather was diagnosed with cancer. At the time, I was working in publicity and public relations, but I felt a strong pull to use …
Your story matters. If you'd like to contribute your experience with MDS and inspire others in our community, we invite you to share. Your voice can make a meaningful impact and offer support to those on a similar journey.