Empowering the MDS Community

Patient & Visitor

Explore comprehensive resources tailored for patients and their loved ones. Understand your diagnosis, access treatment information, and find support in every step of your journey. We're here to provide clarity, comfort, and a sense of community.

Who is the MDS Foundation?

We are a global non-profit advocacy organization building critical awareness of Myelodysplastic Syndromes (MDS) - a rare, often undetected blood cancer. The MDS Foundation has supported patients and their families as well as healthcare providers in the fields of MDS, AML and other related cancers for over 30 years.

The MDS Foundation

What is MDS?

Myelodysplastic syndromes (MDS) are a group of bone marrow failure disorders. Healthy bone marrow produces immature blood cells — stem cells - that normally develop into mature, fully functional red blood cells, white blood cells, and platelets. In MDS, these stem cells may not mature and may accumulate in the bone marrow or they may have a shortened life span, resulting in fewer than normal mature blood cells in the circulation.

Learn More

Healthy Blood

Healthy Blood

Blood Cancer

Blood Cancer

Upcoming Events

Placeholder
Webinar

MDS Nutrition: Fueling Your Body For Strength

February 4, 2025

View Event

What's New?

Placeholder

December 9, 2024

Taiho Oncology Data at ASH Annual Meeting Highlight Progress in Oral Therapies for Patients with Blood Cancers

Taiho Oncology, Inc. presented findings from two studies at the 66th American Society of Hematology (ASH) Annual Meeting, focusing on oral therapies for myelodysplastic syndromes (MDS) and MDS/myeloproliferative neoplasm (MPN). The first study, a Phase 1 trial, evaluated ASTX030—a combination of azacitidine and cedazuridine—and established a recommended dose for Phase 2 trials, showing pharmacokinetic profiles comparable to subcutaneous azacitidine. The second study analyzed real-world data comparing INQOVI® (decitabine and cedazuridine) tablets with intravenous or subcutaneous hypomethylating agents, providing insights into clinical outcomes and treatment patterns. These studies underscore Taiho Oncology's commitment to developing oral hypomethylating agents that may reduce treatment burdens for patients with MDS and related conditions.

Read more

Join Our Mailing List

Stay informed and supported. Join our mailing list today for the latest updates, resources, and community events delivered directly to your inbox.

Join

Testimonials

The MDS Foundation has been a great resource for our patients. We held a successful local symposium last year and hope to do that again in the future.

Afaf O

MDSF is fantastic so glad to have you there.

Amy D

We have enjoyed working with the MDS Foundation for many years.

Richard L

MDSF is a terrific organisation, and we appreciate the relationship.

Daniel P

I refer people regularly to the website and patient support services. The MDS Foundation is a great resource.

Mark J

I and my patients are huge fans of the MDS Foundation!

Yazan M

We are excited to keep working with the MDS Foundation as an MDS Center of Excellence to provide our patients the highest quality and state of the art care.

Aditi S

I believe that the Understanding Your MDS booklets and Building Blocks of Hope, MDS and AML Editions are invaluable resources, and I would love to be able to give them to my newly diagnosed patients.

Sophia B

My overall experience with the MDS Foundation is excellent.

Suresh D

I reviewed information on the MDS Foundation website in various languages, and it is very impressive.

Suresh D

It has been a tremendous blessing to have the MDS Foundation’s Northwestern team helping us through our MDS journey.

Stephen and Pat F

Center of excellence is like a 4 star Michelin restaurant rating.

Robert S

The MDS Foundation can assist you in getting into a center of excellence for MDS quickly. It is a top priority.

Amy C

I have found the forum to be a great help.

Marjory B

In my opinion everyone with MDS should put their trust in center of excellence.

Michael

The MDS Foundation proudly partners with the following organizations

MDS AllianceKnow AMLALAN

Get in touch

Email

patientliaison@mds-foundation.org
hcp@mds-foundation.org

Phone within the US

1-(800)-637-0839

Outside the US only

1-(609)-298-1035

Address

The MDS Foundation
4573 South Broad St., Suite 150
Yardville, NJ 08620

Guide Star Platinum

A global non-profit advocacy organization, supporting patients, families and healthcare providers in the fields of MDS and its related diseases for over 30 years

© 2024 MDS Foundation. All rights reserved.