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Leucemia Mielomonocitica / Myelomonocytic Leukemia

This topic has 4 replies, 1 voice, and was last updated 13 years, 4 months ago by vickinish.

Viewing 5 posts - 1 through 5 (of 5 total)

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December 8, 2010 at 6:54 pm #23014

Leticia Mazo
Member

Hola a tod@s,

Mi padre tiene leucemia mielomonocita subaguda, un tipo de sindrome mielodisplasico, y me gustaría saber si hay alguien más con esa enfermedad.

Muchas gracias a tod@s,

Leticia

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Hello everyone,

My dad has Myelomonocytic Leukemia, a kind of myelodysplastic syndromes. I would like to know if there is anyone with this illness.

Thanks in advance for your help.

Leticia

December 19, 2010 at 5:12 pm #23028

Jack_dup1
Member

Hola, Leticia,

I’m sorry to hear about your father. I was diagnosed with Chronic MyeloMonocytic Leukemia 8 years ago and was told that I had 10 to 60 months survival time when diagnosed. I can’t say that the last 8 years have been easy, but I am still hear.
Jack

December 19, 2010 at 6:23 pm #23029

vickinish
Participant

Jack, glad to hear you are still out there.

I was diagnosed with CMML almost five years ago. I had no treatment until about a year ago. I too take hydroxyurea but it is to keep my platelets down in the normal range.

It is a very unpredictable disease and very hard to say what course it will take with an individual. But note that Jack and I are still around and I recommend live life to the fullest.

Vicki in California

December 28, 2010 at 9:10 am #23036

Leticia Mazo
Member

Hello Jack and Vicki,

Thanks for your messages.
I’m glad to hear that both of you are still figthing and of course Merry Christmas.

My dad has CMML but the doctor say the disease is acute, but as Jack says who knows..we are still here and we try to enjoy every minute toghether.

Which is this medicine?? hydroxyurea ???

December 29, 2010 at 12:55 am #23037

vickinish
Participant

Hydroxyurea is an antineoplastic drug that was originally used to treat solid tumors. There are other newer drugs for that purpose now.

The reason Jack and I are taking it is for the side effect it has – it lowers all lines of your blood. Jack needs his white cells lowered, I need my platelets lowered. Adjusting the dose results in the correct degree of effect on the one blood line while not adversely affecting the other lines. It is a generic drug, inexpensive and effective for us.

CMML presents itself in many different ways. Your dad may have too few platelets or red cells. Then hydroxyurea is not for him. Let us know how he is doing and what treatment plan is devised.
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