Hello, all. I was diagnosed with MDS three weeks ago and looking for some advice from this wonderful list.
I have an extremely high-risk case of secondary MDS with two chromosome abnormalities, and have been told I need a transplant ASAP. I am waiting to find out if my only sister is a match; I should know in another week.
Meanwhile, I’m trying to decide between Hopkins and Hutchinson, assuming we can find a donor who matches and that my insurance plan will cover both. I know everyone’s case is extremely different but wonder if anyone has any words of wisdom for me. I feel more comfortable with the style of the Hutchinson staff but going to Seattle would be somewhat harder logistically. On the other hand, I have a stronger support system there.
I’ve been reading more than posting since I joined this list several weeks ago. But I want to say that I think this list is fabulous and I appreciate all of you for your contributions. It’s so good to know there’s such a supportive group of people out there.
Thanks for any thoughts you may have.
Simon C.