The MDS Foundation proudly partners with the following organizations
The MDS Foundation proudly partners with the following organizations
Phone within the US
1-(800)-637-0839Outside the US only
1-(609)-298-1035Address
The MDS Foundation
228 Park Ave S
PMB 118983
New York
NY 10003-1502
The MDS Foundation is a global nonprofit 501(c)(3) advocacy organization (EIN 22-3283911), supporting patients, families, and healthcare providers in the fields of MDS and related diseases for over 30 years.
© 2024 MDS Foundation. All rights reserved.
Every gift helps patients, caregivers, and healthcare professionals access life-saving resources, support, and education. Together, we can make a difference. Even a small contribution can create a big impact. Thank you for your generosity.
Join a powerful movement to amplify the voices of those impacted by MDS. By sharing your story, you can help support others, increase awareness of MDS, and drive change for a cancer too often overlooked.
Together, we're building a community and a collection of stories that honors real experiences and raises awareness. Your voice is a vital part of the story. Let it be heard.
It's easy on the MDS Exchange - our online community.
Just follow these steps:
To get started, log in to the MDS Exchange. If you’re new, simply create an account—it only takes a minute.
Click on Settings in the top menu, then select Edit Profile to update your information.
Share your story in the space provided. You can also upload a photo if you’d like.
Decide whether you’d like your story to stay within the MDS Exchange community or also be featured on the MDS Foundation’s Story Wall web page.
Your story matters. If you'd like to contribute your experience with MDS and inspire others in our community, we invite you to share. Your voice can make a meaningful impact and offer support to those on a similar journey.
You can offer support and encouragement by commenting on their posts—and don't forget to check for any messages left on your own. Together, we can amplify the voices of MDS and help those impacted by these rare blood cancers.
By sharing your story, you help others feel less alone, raise awareness of available support, and celebrate the resilience that defines our community. Sharing your story can also help the MDS Foundation understand the priorities and unmet needs of the MDS community - so that we can help make the future better for all those impacted by MDS.
Patient
i was sent to a hemotologist after a routine cbc test from my primary care doctor back in 2015 because my platelets were iver 600. i was placed on hydroxyurea and took it for 7 years with different …
Patient
I am 76 living with MDS.I also have other medical issues. I was told Over a period of time I was Anemic. I wanted to find out why! Thats when they found MDS. My mother’s mother was 80 when she was…
Patient
recently dia
Patient
In late 2020, my primary care doctor noticed that my platelet counts were a little under normal. At a following check-up, they decreased again. He sent be to a hematologist-oncologist who sent me for …
Patient
In 2021 my internist, who I have been seeing for 15 years, suggested that I see a hematologist because he was concerned about my low RBCs. He referred me to Dr Raphael at NYU Perlmutter. At the time I…
Patient
I was diagnosed with myelodysplastic syndrome in 2010. I had peripheral blood cytopenias (pancytopenia). The first few years I felt good in spite of the fact that I had obvious health problems: bruise…
Join the Voices of MDS as we raise awareness, inspire others, and transform the future for all those impacted by MDS.
