MDS is a bone marrow failure disorder
MDS is a blood cancer
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Welcome to the MDS Patient Message Board. We hope that you will find this to be a very valuable resource in your journey. We have recently revised the format of our forum to be much more user friendly and pleasing on the eyes. Let us know if you have any problems, or if you have additional suggestions on how we might further improve our site.

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  • in reply to: Azra Raza, MD/Univ. of Mass #8911

    Dr. Raza is great, and is exactly the type of doctor you should be looking for. I only wish we had seen her sooner in my father’s disease.

    We need more support of these types of research centers in order to find valid approaches, not suggestions of nutritional or alternative medicine. Azra studies your (or similar) genetic profiles and drugs against cultures. They can then put that research directly into practice whilst others read about it months later. They are researchers, not witch doctors. The fact is you have a disease which is probably going to kill you in one way or another within 5-10 years or has killed thousands before you. If you do not support trials, or push others into alternative medicine you are both shorting yourself and humanity.

    I am not saying that cures for some cancers cannot be found in the bark of a tree, they can, but you are not going to find it, and in the mean time you cause others to lose real hope they may have with tested drugs.

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