The MDS Foundation proudly partners with the following organizations
The MDS Foundation proudly partners with the following organizations
Phone within the US
1-(800)-637-0839Outside the US only
1-(609)-298-1035Address
The MDS Foundation
228 Park Ave S
PMB 118983
New York
NY 10003-1502
The MDS Foundation is a global nonprofit 501(c)(3) advocacy organization (EIN 22-3283911), supporting patients, families, and healthcare providers in the fields of MDS and related diseases for over 30 years.
© 2024 MDS Foundation. All rights reserved.
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Informative Downloads
Access valuable information about Myelodysplastic Syndromes through our collection of downloadable resources. From informative PDFs to fact sheets, these materials are designed to provide helpful insights for anyone seeking a deeper understanding of MDS.
This resource is designed to give patients and caregivers the in-depth information that they need to make the most informed decisions regarding treatment and long-term care.
These newsletters provide the latest Foundation updates, research breakthroughs, and inspiring stories within the MDS community.
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We know that navigating MDS-related anemia can feel overwhelming, and finding clear, reliable information is crucial. That’s why we’re excited to introduce myMDS, a set of resources designed to help you better understand MDS and feel more confident in conversations with your healthcare team.
Newly revised and updated, 100 Questions & Answers About Myelodysplastic Syndromes provides authoritative and practical answers to the most common questions asked by patients and their loved ones.
We have assembled a listing of assistance programs available to MDS patients. It is important to know that there is support for those who cannot afford medicine or other healthcare costs.
This resource presents a concise yet comprehensive overview of key numerical insights, offering a data driven perspective on the prevalence, impact, and various aspects of MDS.
When dealing with an illness the medical terminology can be just as intimidating as the diagnosis. This Glossary of MDS Terms will help you to better understand your diagnosis, symptoms and possible treatments.
Bergit Korschan-Kuhle is a courageous woman. She has been living with the diagnosis of MDS since 2006. In “Out of Shape” she takes the reader on a journey from her first symptoms over a decade ago to the present day.
Compiled by MDS patient groups and clinicians, this guide offers essential questions to ensure patients are well-prepared for consultations and better informed about their condition.
This PDF explains abnormal blood cell production and its symptoms, such as fatigue and infection risks. It outlines treatment goals aimed at improving quality of life and the necessity of multiple treatment cycles.
This resource provides you with the information needed to know and understand your MDS subtype, IPSS-R score, and gene mutation profile.
A comprehensive guide that explores the intricacies of bone marrow, shedding light on its crucial role in health and its connection to myelodysplastic syndromes (MDS).
Prefer a physical copy of our materials? Fill out our form to receive a free printed version delivered straight to your door. Get access to valuable resources in a format that suits your needs.
