The MDS Foundation proudly partners with the following organizations
The MDS Foundation proudly partners with the following organizations
Phone within the US
1-(800)-637-0839Outside the US only
1-(609)-298-1035Address
The MDS Foundation
228 Park Ave S
PMB 118983
New York
NY 10003-1502
The MDS Foundation is a global nonprofit 501(c)(3) advocacy organization (EIN 22-3283911), supporting patients, families, and healthcare providers in the fields of MDS and related diseases for over 30 years.
© 2024 MDS Foundation. All rights reserved.
Every gift helps patients, caregivers, and healthcare professionals access life-saving resources, support, and education. Together, we can make a difference. Even a small contribution can create a big impact. Thank you for your generosity.
In honor of MDS World Awareness Day on October 25, join a powerful movement to amplify the voices of those impacted by MDS. By sharing your story, you can help support others, increase awareness of MDS, and drive change for a cancer too often overlooked.
Together, we're building a community and a collection of stories that honors real experiences, raises awareness, and leads into MDS World Awareness Day - and beyond. Your voice is a vital part of the story. Let it be heard.
It's easy on the MDS Exchange - our online community.
Just follow these steps:
To get started, log in to the MDS Exchange. If you’re new, simply create an account—it only takes a minute.
Click on Settings in the top menu, then select Edit Profile to update your information.
Share your story in the space provided. You can also upload a photo if you’d like.
Decide whether you’d like your story to stay within the MDS Exchange community or also be featured on the MDS Foundation’s Story Wall web page.
Your story matters. If you'd like to contribute your experience with MDS and inspire others in our community, we invite you to share. Your voice can make a meaningful impact and offer support to those on a similar journey.
Join the Voices of MDS as we shine a light on your stories for MDS World Awareness Day on October 25. Raise awareness, inspire others, and transform the future for all those impacted by MDS.
You can offer support and encouragement by commenting on their posts—and don't forget to check for any messages left on your own. Together, we can amplify the voices of MDS and help those impacted by these rare blood cancers.
By sharing your story, you help others feel less alone, raise awareness of available support, and celebrate the resilience that defines our community. Sharing your story can also help the MDS Foundation understand the priorities and unmet needs of the MDS community - so that we can help make the future better for all those impacted by MDS.
Patient
I was diagnosed with MDS ring sideroblasts in 2018. I was on Procrit for two
years and then Luspatercept for two years. my hemoglobin dropped to 7.8
and had my first transfusion on August 1, 2025. I wi…
Patient Advocate
There are moments in life that, quite literally, change you. They take your breath away, cause you to take a hard look at your life, how you are living, and force you to make a choice- to allow the t…
Patient Advocate
From a young age, my parents instilled in me the importance of easing the burdens of others and leaving the world better than I found it. That early lesson shaped who I am and why I have always been d…
Patient Advocate
My journey into fundraising for cancer organizations began when my grandfather was diagnosed with cancer. At the time, I was working in publicity and public relations, but I felt a strong pull to use …
Patient Advocate
My journey with the MDS Foundation began 17 years ago, during a time of uncertainty in my life. I had been working for a major car credit company for 18 years, and when they decided to relocate, all e…
Patient Advocate
Starting out, I thought I knew what I wanted and where I wanted to be. However, life has a way of shaping, or in my case, reshaping, your path as you walk it. From the time I was young, I felt called …
