To order your copy of 100 Questions & Answers About Myelodysplastic Syndromes, Second Edition (print or e-book), please call 1-609-298-1035.
Learn more: https://www.mds-foundation.org/100-questions-answers-about-myelodysplastic-syndromes/
This booklet will help you understand how the bone marrow functions and how these functions are impacted by MDS. The Bone Marrow booklet is available in several languages.
Learn more: https://www.mds-foundation.org/bone-marrow-handbook/
This program is designed to give patients and caregivers the in depth information that they are looking for and to allow them to take an active part in their MDS journey. The BBoH is available in several languages. Click the link below for a 3 minute introduction to the Building Blocks of Hope Program or to begin learning more about MDS.
Learn more: https://www.mds-foundation.org/bboh/
Our MDS Centers of Excellence have physicians that specialize in the treatment of MDS. Please use the following link for more information and to view our Centers of Excellence. If you would like to schedule an appointment with one of our Centers of Excellence physicians, please contact our patient liaison at 1-609-298-1035 x210 or patientliaison@mds-foundation.org.
Learn more: https://www.mds-foundation.org/mds-centers-of-excellence/
A type of research study that tests how a drug, medical device, or treatment approach works in people. Please use the link below for more information on clinical trials.
Learn more: https://www.mds-foundation.org/clinical-trials/
Articles from MDS Europe – Read More
This document provides answers to some of the most common MDS related questions.
Learn more: Frequently Asked Questions
This is a list of commonly asked questions you may use in your MDS diagnosis and
treatment journey.
View here – Healthcare Visit Discussion Guide
DO YOU KNOW YOUR MDS SUBTYPE, IPSS-R SCORE AND GENE MUTATION PROFILE?
When dealing with an illness the medical terminology can be just as intimidating as the diagnosis. This Glossary of MDS Terms will help you to better understand your diagnosis, symptoms and possible treatments. If you would like to receive a spiral bound pocket guide, please contact the Foundation at 1-609-298-1035.
Learn more: Glossary of MDS Terms
MDS ManagerTM is a mobile app designed to assist patients and caregivers LIVING with MDS to more effectively manage their care.
Learn more: https://www.mds-foundation.org/mdsmanager/
View all the e-newsletters of MDS Foundation here – https://www.mds-foundation.org/newsletters/
This new initiative of the MDS Foundation is devoted to MDS patients, family members and caregivers. In each episode, experts in the field will discuss novel information on MDS, such as new diagnostic techniques, new therapies etc. They will also answer frequently asked questions.
This section will provide you with the opportunity to learn about MDS patients and their stories.
Watch Cindy Sargent’s Story below or click here to learn about MDS patients and their stories.
Myelodysplastic Syndromes 2023: What’s New?
The Symposium brought together an international faculty of experts who presented, debated, and discussed recent advances in myelodysplastic syndromes (MDS). This summary describes the presentations, highlighting current challenges, new developments, as well as potential future approaches to improve the diagnosis and treatment of MDS.
What can MDS patients expect in the future?
Views from a patient who attended ASH 2020 Virtual
Much New Knowledge but No New Drugs
An MDS patient’s reflections on participating in the MDS Foundation’s 15th International Symposium on MDS.
The Canyon between Diagnosis and Therapy in MDS – May 8-11, 2019
A patient perspective on the MDS Foundation’s 15th International Symposium on Myelodysplastic Syndromes in Copenhagen.
MDS Foundation’s 2017 ASH Symposium – December 8th, 2018
This summary discusses recent developments in our knowledge of the immune system, the bone marrow micro-environment and the genetic evolution of MDS that are optimizing prognosis and management strategies. Intrinsic and extrinsic factors contributing to disease origin and development, as well as influencing therapeutic responses.
MDS Foundation’s 14th International Symposium on Myelodysplastic Syndromes – May 3-6, 2017
This guide includes material related to clinical aspects of MDS diagnosis, prognosis, and management as well as the newest data in MDS basic and translational research. The MDS Foundation selected discussions we feel they are the most relevant and important for patients who are currently living with MDS.
Living with MDS
Drorit Merkel, MD, Cancer Biology Research Center, Tel Aviv University, Tel Aviv, Israel, discusses some of the issues that can arise for those living with myelodysplastic syndromes and what can be done to minimize these issues. This interview took place at the 2nd Regional Symposium on Myelodysplastic Syndromes (MDS 2020), held in Tel Aviv, Israel.
Quality of Life Concerns; Living with MDS
Rena Buckstein, MD, FRCPC, Odette Cancer Research Program, Sunnybrook Research Institute, Toronto, Canada, discusses the quality of life (QoL) of patients with myelodysplastic syndromes, and the factors contributing to reductions and improvements in QoL. This interview took place at the 2nd Regional Symposium on Myelodysplastic Syndromes (MDS 2020), held in Tel Aviv, Israel.
Improving MDS Quality of Life
Rafael Bejar, MD, PhD, UC San Diego Moores Cancer Center, San Diego, CA, discusses the quality of life of patients with myelodysplastic syndromes and the work being done to reduce the burden of this disease. This interview took place at the 2nd Regional Symposium on Myelodysplastic Syndromes (MDS 2020), held in Tel Aviv, Israel.
MDS: Future Directions
Galia Bartfeld-Stemer, MD, Ha’Emek Medical Center, Afula, Israel, outlines future directions for patients with low and high-risk myelodysplastic syndromes. This interview took place at the 2nd Regional Symposium on Myelodysplastic Syndromes (MDS 2020), held in Tel Aviv, Israel.
MDS Trials: What Should Patients be Looking For?
Rena Buckstein, MD, FRCPC, Odette Cancer Research Program, Sunnybrook Research Institute, Toronto, Canada, discusses the upcoming myelodysplastic syndromes (MDS) clinical trials. This interview took place at the 2nd Regional Symposium on Myelodysplastic Syndromes (MDS 2020), held in Tel Aviv, Israel.
MDS: What Treatments are on the Horizon?
Rafael Bejar, MD, PhD, UC San Diego Moores Cancer Center, San Diego, CA, outlines therapies on the horizon for both high and low-risk myelodysplastic syndromes. This interview took place at the 2nd Regional Symposium on Myelodysplastic Syndromes (MDS 2020), held in Tel Aviv, Israel.
An In-Depth Look at MDS
Galia Bartfeld-Stemer, MD, Ha’Emek Medical Center, Afula, Israel, gives an in-depth overview of myelodysplastic syndromes (MDS), outlining the classification, etiology, diagnosis, symptoms, and treatment of the disease. This interview took place at the 2nd Regional Symposium on Myelodysplastic Syndromes 2020, held in Tel Aviv, Israel.
MDS 2020 Patient Meeting
Drorit Merkel, MD, Cancer Biology Research Center, Tel Aviv University, Tel Aviv, Israel, discusses the annual patient meeting held by the MDS Foundation and the importance of this meeting. This interview took place at the 2nd Regional Symposium on Myelodysplastic Syndromes (MDS 2020), held in Tel Aviv, Israel.
MDS Patients Must Begin the Search for a Donor As Soon As Possible
Dr Maria Teresa Voso, of the University Tor Vergata, Rome, Italy, talks about the importance of starting a donor search for patients with myelodysplastic syndromes (MDS) as soon as possible. She explains that a transplant eligible patient must be tested for a donor search as soon as their diagnosis is made. Unfortunately, transplantation is not usually suitable for older patients, but for patients up to the age of 65 to 70, the search for a donor should be started as as soon as possible as time is critical.
Patient/Caregiver Update: What’s New and What’s Next in the Treatment of MDS?
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In this activity, developed by ManagingMDS.com in cooperation with the MDS Foundation, patients with MDS and their caregivers will hear from two key experts about a variety of topics including: personalized risk stratification, iron overload, immunotherapies, and new strategies for treating lower- and higher-risk MDS. Join Dr. Mikkael Sekeres and Dr. David Steensma as they discuss best practices for considering a patient’s individual molecular abnormalities into their diagnosis and prognosis, and as they review new treatments that may change the future of MDS treatment.
This activity is supported by educational grants from Astex Pharmaceuticals and Celgene Corporation.
The section will provide you with a brief overview of MDS, including the causes and possible symptoms.
Learn more: https://www.mds-foundation.org/what-is-mds/
These organizations also provide information for MDS patients, caregivers and their families.
Learn more: https://www.mds-foundation.org/links-to-related-organizations/
FREE One-Day Conferences for MDS Patients & Caregivers LIVING with MDS. Our in-person forums serve as a great resource for community support of those affected by MDS.
Learn more: https://www.mds-foundation.org/patient-and-family-forums/
MDS Patient Support Groups facilitate a community of local support and resources.
Learn more: https://www.mds-foundation.org/global-patient-support-groups/
Our Online Message Board serves as a great resource for support of those affected by MDS.
Learn more: https://www.mds-foundation.org/forums/forum/patient-message-board/
This calendar includes MDS events held both in the US and internationally.
Learn more: https://www.mds-foundation.org/event/
