This program is designed to give patients and caregivers the in depth information that they are looking for and to allow them to take an active part in their MDS journey. The BBoH is available in several languages. Click the link below for a 3 minute introduction to the Building Blocks of Hope Program or to begin learning more about MDS.
In this activity, developed by ManagingMDS.com in cooperation with the MDS Foundation, patients with MDS and their caregivers will hear from two key experts about a variety of topics including: personalized risk stratification, iron overload, immunotherapies, and new strategies for treating lower- and higher-risk MDS. Join Dr. Mikkael Sekeres and Dr. David Steensma as they discuss best practices for considering a patient’s individual molecular abnormalities into their diagnosis and prognosis, and as they review new treatments that may change the future of MDS treatment.
This activity is supported by educational grants from Astex Pharmaceuticals and Celgene Corporation.
MDS Foundation’s 2017 ASH Symposium – December 8th, 2018
This summary discusses recent developments in our knowledge of the immune system, the bone marrow micro-environment and the genetic evolution of MDS that are optimizing prognosis and management strategies. Intrinsic and extrinsic factors contributing to disease origin and development, as well as influencing therapeutic responses.
MDS Foundation’s 14th International Symposium on Myelodysplastic Syndromes – May 3-6, 2017
This guide includes material related to clinical aspects of MDS diagnosis, prognosis, and management as well as the newest data in MDS basic and translational research. The MDS Foundation selected discussions we feel they are the most relevant and important for patients who are currently living with MDS.
When dealing with an illness the medical terminology can be just as intimidating as the diagnosis. This Glossary of MDS Terms will help you to better understand your diagnosis, symptoms and possible treatments. If you would like to receive a spiral bound pocket guide, please contact the Foundation at 1-609-298-1035.
Our MDS Centers of Excellence have physicians that specialize in the treatment of MDS. Please use the following link for more information and to view our Centers of Excellence. If you would like to schedule an appointment with one of our Centers of Excellence physicians, please contact our patient liaison at 1-609-298-1035 x210 or firstname.lastname@example.org.