Susan has been with the MDS Foundation for fourteen years, originally as Office Manager. Susan came to the Foundation with 15 years of prior pharmaceutical experience in the Medical and Scientific Affairs, Finance, and Marketing Research areas. At the Foundation, Susan oversees all daily business activities, including finances, staffing, and staff projects. She works with the MDS Board of Directors and Board Committee members on strategic planning for meeting the ongoing needs of MDS patients and education of MDS healthcare professionals and is currently leading a Foundation Lay Board initiative.
Tracey joined the MDS Foundation in 2004 as a part-time Patient Coordinator, assisting with patient education programs. Presently, Tracey manages the corporate grants program and is responsible for all corporate relations and new business development. She serves as liaison to the Foundation’s International Nurse Leadership Board, International Working Group for Prognosis in MDS (IWG-PM), and MDS/MPN International Working Group (MDS/MPN IWG), as well as overseeing Foundation development efforts.
Tami joined the Foundation in December 2016 as our first Director of Development. Tami has 25 years of non-profit experience, helping rare disease organizations build a solid strategic development plan in order to engage the community for support. Her passion is creating valuable partnerships while building sustainable programs that will impact the future of rare diseases. Tami is excited to now direct this passion towards MDS.
Janice joined the Foundation in 2008 and is responsible for the coordination, quality control, and production of printed and electronic Foundation material. Janice also manages the Foundation’s donation database, including membership renewals, patient forum attendance and administrative bookkeeping services.
Lea has been associated with the Foundation since 2001. Currently, Lea manages all aspects of various CME programs, live symposia and educational meetings for healthcare professionals. She is also responsible for patient educational projects such as the coordination and translation of our Building Blocks of Hope® patient and caregiver resource and the coordination and management of the Foundation’s Patient Forum meetings.
Audrey joined the MDS Foundation fourteen years ago as the Patient Liaison. She came to the MDS Foundation with over 14 years’ experience in patient services working in the Medical Affairs Department of a leading pharmaceutical company. Her primary role is to provide international support to patients, families, and caregivers touched by MDS. Whether it is face-to-face or by telephone or email, Audrey responds to questions regarding MDS, including information on treatment options, clinical trials, financial assistance, as well as providing patients with a priority referral to any MDS Center of Excellence worldwide.
Dee joined the Foundation in 2005 and assists with patient correspondence. In addition to this responsibility, Dee manages the Foundation’s exhibit shipment needs, coordinates mailings, and is responsible for patient information inquiries, ensuring the acknowledgment of requests in a timely manner.