Upcoming 2021 Webinars for MDS Patients & Caregivers
Upcoming 2021 Webinars for MDS Patients & Caregivers LIVING with MDS. The diagnosis of MDS is often unexpected and filled with both immediate and long-term challenges. You probably have many questions. Whether you are a newly diagnosed patient, a long-term survivor, or caregiver, our webinar series will have something for you.
Given the growing concerns surrounding COVID-19, the MDS Foundation will be hosting a series of webinars in place of our in-person patient forums. While the MDS Foundation was hopeful to meet in-person at our patient forums, protecting our attendees, speakers, supporters, and staff remains our top priority. Large gatherings and travel continue to pose significant health and safety concerns, which make it impracticable to hold the meetings. We hope to resume our in-person forums once it is safe to do so.
We will be collaborating with renowned hematology professionals who will be addressing key topics and questions you may have using language that is easy to understand in a 90-minute format that will include live Q&A opportunities for all participants.
Register now for our webinars planned for this series. Led by top thought leaders in the field, you can be assured you are getting information you can trust.
- January 9, 2021: Updates from ASH 2020: Promising Treatment Advances for MDS and AML @12 pm ET
Speaker: Amy Elizabeth DeZern, MD, MHS; Johns Hopkins Sidney Kimmel Comprehensive Cancer Center
Updates from ASH 2020 will be presented. This webinar will provide an overview of new emerging treatments for MDS and AML patients. The latest promising clinical trials and research findings impacting the biology and treatment of MDS and AML patients will be discussed.
View Webinar Q&A
- February 6, 2021: MDS: Understanding Disease Characteristics and Progression @12 pm ET
Speaker: Azra Raza, MD; Columbia University Medical Center
This webinar will provide an overview of MDS and how prognosis is determined, focusing on the MDS subtypes and disease progression. Understanding the diagnosis of MDS, details about the various approaches to treatment, and answers to common questions will be discussed.
- March 13, 2021: MDS: Factors to Consider in the Initial Treatment Approach @12 pm ET
Speaker: Yazan Madanat, MD; University of Texas Southwestern Medical Center
This webinar will provide an overview of MDS and what treatment path to take in a patient newly diagnosed with myelodysplastic syndromes. Factors, such as: the type of MDS; the prognostic score (risk score) of the MDS; a person’s age, overall health, and preferences will be discussed.
View Webinar Q&A
- March 20, 2021: MDS & COVID-19 Vaccine Webinar @12 pm ET
Peter T. Curtin, MD and Randy A. Taplitz, MD; City of Hope Medical Center
This webinar will provide an overview of COVID-19 and myelodysplastic syndromes including frequently asked questions. The latest COVID-19 vaccines and what they mean for those with bone marrow failure disorders will be discussed.
- April 17, 2021: Clinical Implications of Genetic Mutations in Myelodysplastic Syndromes @12 pm ET
Rami Komrokji, MD; Moffitt Cancer Center
This webinar will provide an overview of recent advances in the genetic understanding of MDS, with a particular focus on the emerging role for mutational data in clinical management as a potential tool to assist in diagnosis, risk stratification, and therapeutic decision-making.
- May 8, 2021: Transfusion Dependence and Transfusion Support in MDS @12 pm ET
Lewis R. Silverman, MD; Icahn School of Medicine at Mount Sinai
This webinar will provide an overview of transfusion dependency in MDS, focusing on blood transfusion benefits and risks. Understanding the impact of transfusion dependence, and answers to common questions will be discussed.
- June 5, 2021: Becoming a Partner in Your Care: MDS Support Group @12 pm ET
Sandra Kurtin, PhD, ANP-C, AOCN; The University of Arizona Cancer Center
Join us for a free webinar to support our patients and loved ones. This webinar will address all aspects of becoming a partner in your care. We invite you to learn more about self-care, and the physical, social, and emotional challenges that patients and caregivers face. Whether you are a patient or caregiver, you will be able to connect with others, gather ideas, learn about resources, and ask questions.
- 17 de julio de 2021: Webcast de MDS en Español @12 pm hora del este
Que son los sindromes mielodisplasicos?
Guillermo Montalbán Bravo, MD, MD Anderson Cancer Center
Este seminario les va a proveer como se determina el diagnóstico de MDS, se estará enfocando en los subtipos y la manifestación de MDS. Comprendiendo el diagnostico de MDS y los detalles de los diferentes tratamientos, y las respuestas a las preguntas más comunes serán desarrolladas.
Avances en el tratamiento de los sindromes mielodisplasicos.
Guillermo Garcia-Manero, MD, MD Anderson Cancer Center
Además, estaremos proveyendo los tratamientos y estrategias para los pacientes de MDS. Las últimas pruebas clínicas que son muy positivas y prometedor y el tratamiento y la biología de los pacientes con MDS que van a ser revisados.
Moderado por Jessica MacIntyre, APRN, NP-C, AOCNP, Sylvester Comprehensive Cancer Center
Este webinar se presentará en español.
- August 7, 2021: Outcomes for High-Risk MDS Patients Undergoing Transplant vs Standard Non-Transplant Therapies @12 pm ET
Erica D. Warlick, MD, University of Minnesota Medical Center
This webinar will provide an overview of the role of allogeneic hematopoietic cell transplantation (alloHCT) for high-risk MDS patients. Standard therapies for patients with MDS including hypomethylating agents (HMAs) and a variety of novel agents outside of allogeneic HCT will be discussed.
12 PM – 2 PM ET
September 25, 2021 – Toronto MDS Patient Webinar
Updates from EHA 2021: Promising Treatment Advances for MDS and AML – Heather Leitch, MD, St. Paul’s Hospital, Vancouver, Canada
Updates from the European Hematology Association (EHA) 2021 Virtual Congress will be presented. This webinar will provide an overview of new emerging treatments for MDS and AML patients. The latest promising clinical trials and research findings impacting the biology and treatment of MDS, and AML patients will be discussed.
The Role of Allogeneic Stem Cell Transplant in MDS – Bart L. Scott, MD, Fred Hutchinson Cancer Research Center, Seattle, Washington
This presentation will focus on reduced-intensity allogeneic stem-cell transplantation as a treatment option for MDS and describe strategies to manage treatment side effects as well as potential long-term and late effects of hematopoietic cell transplantation.
Aplastic Anemia and Myelodysplasia Association of Canada – Cindy Anthony, Executive Director, AAMAC
About AAMAC and its resources for patients, caregivers and healthcare providers will be discussed.
- October 16, 2021: CAR T Cell Therapy in MDS/AML @12 pm ET
David A. Sallman, MD, Moffitt Cancer Center
This webinar will provide an overview on CAR T cell immunotherapy, an approach that takes patients’ own immune cells and equips them with chimeric antigen receptors (CARs) that enhance their ability to target and eliminate cancer cells. Recent advances leading to next-generation CAR T therapies for MDS/AML patients will be discussed.
Learn from experts about treatment therapies and strategies for Patients & Caregiver LIVING with MDS.
Thank you to Acceleron, Bristol-Myers Squibb, Gamida Cell, Jazz, Novartis, and Takeda for supporting these important events.