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Exjade given for Iron Overload

Tagged: Exjade with reference to Iron Overload

This topic has 2 replies, 3 voices, and was last updated 8 years, 4 months ago by LeAnn Duke.

Viewing 3 posts - 1 through 3 (of 3 total)

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August 16, 2015 at 8:29 pm #27240

Joyce Armes
Participant

I need to know if there are other people whom have MDS with a 7 IPSS who are using Exjade medication due to Iron Overload?

I need to some feedback if there are other people who have used Exjade for at least 90 days and if the results have been favorable when compared to the many risks involved with taking the medication?

August 21, 2015 at 4:20 pm #27264

Fatima Pasha
Participant

Hi Joyce,

I have been on Exjade since November 2014, I take 1000mg daily. My ferritin levels had reached as high as 3,384. My results two weeks ago were 1600 and I haven’t had a transfusion since October 27, 2014; I use to need a blood transfusion every three to five weeks, I have had 23 transfusions between November 2012 to October 2014.

To answer your question; despite the side effects my doctors feel that is the best for my organs.

December 14, 2015 at 4:46 pm #28801

LeAnn Duke
Participant

Pasha, my name is LeAnn and I was diagnosed with low risk MDS (RARS refractory anemia with ringed sideroblast) in June 2015. I am transfusion dependent and have been having transfusions approximately once a month (every 3 1/2 – 5 weeks). I am going this month into my 5th week and my levels have dropped rather slowly. My iron level was high to begin with and with the transfusions it continues to climb. The last number was 927 so the DR will keep an eye on it and has mentioned Exjade as the medication to keep my iron level in check.

My question is did taking Exjade help your red blood cells at all? How often are you having to have transfusions now?

All of this is very new to me! Thanks for any help you can offer!
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