Susan,
I am negative for CMV.
I was just looking at the Acor.org website under BMT-Talk list recently, because it was recommended on this forum years ago.
Since you actually need to register for that site and then subscribe to a particular list (a 2 step process), I am going to paraphrase (for privacy of poster) what I saw on that site for you from posts I was just reading about CMV from 2014:
1. Person A posted they were CMV+, treated a long time ago (late 80’s or early 90’s), believe CMV was common, and at a point was treated with some kind of antiviral meds but didn’t know when exactly.
2. Person B posted that their relative was scheduled for a transplant, tested beforehand positive in blood, eye for the CMV virus and was then started on antiviral IV.
3. Person C had CMV after transplant and was treated with glanciclovier and said that was the only proper treatment for it at that time.
4. Person D said was CMV+ prior to transplant. Transplant went smoothly then CMV detected in blood after transplant and treated with meds. Does not mention type of meds. Said doctor continues checking for virus, but since treated not detected, doing great about six months after transplant.
Hope this helps in some way. Best wishes.
-Stacey
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