MDS after Kidney Transplant

[Laura Webster]

My husband had a kidney transplant 20 years ago. Actually, it was his 5th….different story. It is still doing well but he was just diagnosed with MDS-type RCMD last week. Right now he is getting a high dose of epo and we will see how that works. He seems to have responded to the lower doses- just not enough. He is 55 years old and it doesn’t seem that he will be a likely candidate for a bone marrow transplant. I don’t want to rule this out just yet so I thought I would see if anybody has heard of a kidney transplant recipient receiving a bone marrow transplant.

[mdsfound]

Dear Laura, Thank you for your post. I would recommend that your husband seek a second opinion from one of our MDS Centers of Excellence especially in light of his being a kidney transplant recipient. Your husband should be very carefully assessed before undergoing any treatment. Benefits versus risk analysis should be done with any treatment except supportive care like transfusions or epogen (Procrit). Following is a link to our Centers of Excellence worldwide https://www.mds-foundation.org/mds-centeres-of-excellence/. I hope this information helps.

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