Very confused about bone marrow biopsy results – any thoughts??

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• February 1, 2005 at 11:31 pm #3821
  Sarah J.

  Member

  Hi everyone! Remember me? I’m the somewhat new, quiet girl… I need some advice if anybody has any:

  I had my second bone marrow biopsy on January 6, 2005, and just got my results the other day. The doctors said that originally I had a problem with chromosome 5 but now chromosome 5 is ok and there is a problem with chromosome 8. They also said that there are signs of fibrosis and inflammation in my bone marrow. The doctors said that they are very perplexed and want to see me in early April to go over everything with me. I am flipping out! I can’t wait until April, so I am getting a second opinion with another doctor. Is this good news, bad news, or indifferent news??

  February 2, 2005 at 2:33 am #3822
  sarah

  Member

  Sarah, I think a second opinion is a good idea. I would get an appointment with a center of excellence.

  February 2, 2005 at 1:54 pm #3823
  Joannie

  Member

  HI Sara,

  I too would try to get to a center of excellence and get another opinion soon. April does seem to be a ways off. I personally don’t have any idea what exactly your results mean. Good luck and take care! Joan

  February 2, 2005 at 9:10 pm #3824
  Neil

  Member

  Hi Sarah,
  Have you been seeing a hematologist?
  Did a pathologist or hemopathologist interpret your BMB samples?
  Not sure why they found an abnormal chromosome 5 then changed it to chromosome 8. Would suspect there might be a lack of experience. If that is the case would certainly get to a hemo with experience and with pathologists experienced in seeing marrow of MDS patients.
  Would want to get the chromosome 8 situation clarified as soon as possible. Not in April.

  February 2, 2005 at 10:33 pm #3825
  Terri

  Member

  Sarah, Neil may be right about the lack of experience. I know that when our doctor does this for Bob he wants to send it to One lab that has the expertise with this. My insurance requires it to go somewhere else that he feels is not as capable of. Bob has had in the last year and a half 4 BMB from this doctor, each time he gets it paid somehow with this other lab, My insurance will not pay Out of network labs. I am grateful he has done this as in your case the Experience does matter.

  Wish you luck with the second opinion. Hope all goes well

  February 2, 2005 at 10:59 pm #3826
  sarah

  Member

  Experience does matter in something this serious. Hope you get that appointment soon.

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