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This topic has 5 replies, 1 voice, and was last updated 19 years, 2 months ago by mommachkate.

Viewing 6 posts - 1 through 6 (of 6 total)

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February 28, 2005 at 10:51 pm #4315

alexandra7
Participant

Although there was a time I was almost sure I had MDS now most of the doctors are trying to convince me that it is something that looks like MDS but it is called syderoblastique anaemia . Well they say that in my case it is not bad . I have to much iron that is not worked right because of the ringed syderoblasts . At my last check up the iron was lower and mom says it’s a good sign . I want to know if this type of anaemia is reversible . I mean is it possible that iron is decreasing because the syderablasts are fewer? And one more thing . 4 years ago I had a mild anaemia (the cause is unknown)and my treatment was with iron supliments . Could this have caused the number of syderoblasts to grow ???? Thank u very much . Alexa

March 1, 2005 at 5:45 pm #4316

Neil
Member

Hi Alexa,
Sideroblastic anemia might be a form of MDS, but then again it might not.
Click on the following link for more information. You can also go to a search engine ( I use MSN and Google) for more sites with additional information.

http://www.irondisorders.org/disorders/sba/index.htm

March 1, 2005 at 10:53 pm #4317

alexandra7
Participant

Thank u Neil !!
By the way I remember that I ‘ve read some posts last month and you had some problems with your mother . How is she ? And you? I never get the chance to read posts about your health because you always are concerned with the rest of us .(which is why I would like to thank you so very much) Alexa

March 2, 2005 at 8:16 pm #4318

alice
Participant

Buna Alexandra,please send me your email address or if you have a messenger id so we can speak more;my yahoo id is sory_nick@yahoo.com and my email address is alina2500@yahoo.com

March 2, 2005 at 11:09 pm #4319

Neil
Member

Hi alexa,
My mom passed away on 1/18/05. The cause of death was a bit of a shock. Malignancy of the bone marrow. Her HGB and platelets would not hold even with TX. Counts were normal in September.
I am doing OK. Counts were very good in January, but slipped a bit in Feb. Still no symptoms and feel reasonably well. Will get a better handle on what is going on when I see my doc on 3/10. It might be time to increase the Procrit dosage and have another BMB.

March 3, 2005 at 12:54 am #4320

mommachkate
Member

Hi Alexa, I don,t have any information, I could help you with, I just want to thank you, the sweet and kind post you always send us.Make sure, that you find the answers for every questions, and keep up the strong fight for your health.Best wishes Kate
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