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UPDATE: MUTATIONS IDENTIFIED

This topic has 3 replies, 1 voice, and was last updated 4 years, 4 months ago by David.

Viewing 4 posts - 1 through 4 (of 4 total)

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November 5, 2019 at 1:34 am #49360

ask4angels
Participant

My husband saw the transplant doctor today. We got the news that he has the mutation that his MDS will turn into leukemia. So they are preparing him for a bone marrow transplant. They say it will take approximately two months to get everything ready. If we do not go ahead with the transplant they said approximately 17 months to live. In shock! We are going to the MDS center in Seattle and also the MDS center at MD Anderson in Houston Texas for them to lay eyes on his bloodwork and bone marrow biopsy results. :-(…

November 9, 2019 at 6:24 pm #49387

Donna
Participant

Do you know what mutations he has?
Donna

November 11, 2019 at 1:24 am #49388
ask4angels
Participant
Hi Donna! Alan has SRSF2 – SETBP1 – Tier 2 (Variance of unknown significance in myeloid malignancies).
- This reply was modified 4 years, 5 months ago by ask4angels.
December 2, 2019 at 11:36 pm #49798

David
Participant

Fight against it until the end.

All the research I’ve done, the survivability difference between having it done when you are “healthy” and having it done when the disease has significantly progressed is pretty negligible. Get all the testing and matching done and start the procedure 15 months from now if going thru with it is even an option in your book.
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