[Joseph Agustin]

Thank you for the kind words.
As far as being spiritual, we are Christian non denominational, my father is a pastor and the chaplain for my police department. He is a kind man and a good role model.

[Joseph Agustin]

treatment thus far has been vidaza, 7 days on, 3 weeks off, he has been handling it like a champ, still going to gym with me when he can. Like I mentioned, he gets a shot 1x during each cycle of aranesp. Dr said that the vidaza isnt doing its job, and they are going to change his treatment regiment up after the meeting we have with the university hospital. We have another apt with doc on tuesday, Im taking pops to the university tomorrow. He has had some nose and gum bleeding but platelet count has been decent. Blood transfusions are pretty regular now at 1.5-2 weeks apart. Blasts are pretty solid around 13 I believe, Not going up and not going down, he does transfusions at a count of 7, has been as low as three.

[Joseph Agustin]

Welcome. This place has helped calm my nerves, as well I found a person on here who has offered solitude when all else seem to have failed. It’s a learning curve that’s right, but it’s amazing how quickly we can learn when it’s pertinent. Sounds like your on the right path

[Joseph Agustin]

Yes hemaglobin levels before first transfusion were 5, a month later they are 4.3

[Joseph Agustin]

I emailed you sherry Pratt

[Joseph Agustin]

I’m going to be going to his appointment on wed. Drs told him to go in for a second blood tranfusion in 2 Months this morning but the hospital he went to (went to a tranfusion center last time) wanted to re run all his tests and he just completed them within 24 hours previously. He’s gonna wait till Monday morning.

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