Kenneth, I was diagnosed on my 30th birthday. Today I made it to 19 years of survival. I am honestly healthier at 49 than I was at 30. I was transfusion dependent the first two years but they have been infrequent since then.
Get on a healthy diet and don’t forget to treat other health conditions. I still needed sinus surgery, a hysterectomy and an appendenctomy. In order to keep my MDS under control, I had to aggressively treat other health problems
Procrit did not work for me. B-12 shots every two weeks have really helped. What helped the most was watching my diet and making lifesytle choices to eliminate stress. Don’t ever think that you cannot make positive choices that will help you fight the MDS. Eat right, sleep enough and eliminate toxic habits and if necessary toxic people in your life. You do have power to fight the monster yourself. Stay positive.