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Talked with Audrey at MDS Foundation

This topic has 5 replies, 1 voice, and was last updated 19 years, 3 months ago by Suzanne.

Viewing 6 posts - 1 through 6 (of 6 total)

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January 6, 2005 at 6:39 pm #2851

Dawn
Member

Hi there… I made a call to Audrey and got some information, fortunately they are having a conference in AZ and I think my dad will go…. she also asked me questions on my dads treatment and told me she can hook him up with a center of excellence MD…. I am very happy and excited about this, now hopefully dad will cooperate…. I have mom prodding too and she was excited about the info I had for them and promised me that if dad didnt call Audrey that she would. My dad is in a depressed and feeling hopeless….I wish I could take his place….

January 6, 2005 at 7:35 pm #2852

Donna
Member

That’s good news Dawn! — Hopefully after he connects with a MD from a center he won’t feel so hopeless.

I connected with Audrey as well when Mom was diagnosed, she was very helpful. Because I’m from Canada it was very difficult to get to a center (also, Mom didn’t want too) I did connect with a woman here through our local Red Cross, she was very supportive.

Good Luck,
Donna

January 6, 2005 at 8:08 pm #2853

czaring
Member

Good work Dawn. It sound like you feel a bit more empowered. That’s what this place is all about.

January 7, 2005 at 12:40 am #2854

Dawn
Member

Thanks guys… let’s just pray my stubborn daddy won’t be a pain and say “I’m not traveling that far”..(3.5hrs)…. he can be such a turd!!! But boy do I love that man!!!

January 7, 2005 at 3:24 am #2855

shirlsgirl
Member

hahaha! thanks for making me laugh! Tell him it’s for his own good!
Good Luck! Jody

January 7, 2005 at 4:10 am #2856

Suzanne
Member

Dawn, Tell that Dad of yours not to give up. There are lots of us out here who got past that scary “6 months to a year to live” and “no cure except a bone marrow transplant”! Some of us had the transplant but a lot of us have not for one reason or another and we are months and years beyond that prognosis. Our time has also been quality timefor the most part. Most of us are dealing with experimental drugs going for improvement of our condition or slowing down the progression of the disease.There have been so many new development just in the two years I have been dealing with this disease-a lot of them very recent. I can’t help but feel there is hope for many of us!
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