For CMML Patients Only !

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• November 26, 2016 at 1:02 pm #31082
  Thomas Kowall

  Participant

  I have searched all over the internet and cannot find a “current” on line chat site for cmml patients.

  I am recently diagnosed with cmml-0 which is indolent cmml. All I am supposed to do is take a wait & see approach. In other words, I am not “sick enough” to be treated. How long does this good news last ??? Anyone else out there similar to me ?

  November 29, 2016 at 2:11 pm #31213
  Anonymous

  Inactive

  Dear Thomas, I know this is a difficult situation for you and I would recommend that you go to one of our Centers of Excellence in MDS for a second opinion. I want to make sure you are not being undertreated, just in case there is something that can help you with your quality of life. Following is a link to our Centers of Excellence worldwide https://www.mds-foundation.org/mds-centeres-of-excellence/. If we can be of any further assistance, please do not hesitate to contact us.

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