slight ear aches

• Author
  Posts
• August 29, 2017 at 12:43 pm #33705
  Mark Simpson

  Participant

  There are times I get an ear aches either side. Also I get light headed like I am going to pass out. Not sure if these are related to MDS or not.

  August 29, 2017 at 1:24 pm #33706
  Allan Romriell

  Participant

  I haven’t had ear aches but I do have head issues, more like a low level headache or pressure in my head…. not really sure how to explain it. As you stated not sure if its MDS related or not…… confusing disease to be sure, feel pretty good at times, pretty tired with lots of aches and pains at others……

  August 29, 2017 at 2:57 pm #33709
  Sue

  Participant

  Mark – I’m not sure about the ear aches – but the light headedness could be due to low red counts.
  Allan – my husband used to have ‘head issues’ as well. He never used to have headaches, but then he began having very low-grade headaches similar to yours. This went on for several months. He said that whenever he coughed or sneezed it felt ‘like his brain was dislodging from his head’ a little. And it would get worse when he bent over. It got so bad that one day he was bending over to pick something up, that he fell right on his head. That fall blew open a vessel in his brain (subdural hematoma) and he underwent surgery to repair it. The doc says there was evidence of old blood (likely contributing to his ongoing headaches) and new blood – from the fall. If you are experiencing anything similar to this and have low platelets I would bring this to your physician’s attention right away. It could be nothing – but had we been more vocal about it at the beginning he may not have needed a total of 3 surgeries to repair it (and the last was to resolve an infection from the first 2!)

  August 29, 2017 at 4:01 pm #33710
  Allan Romriell

  Participant

  Sue,
  Thank you very much for the info. My platelets have been pretty good over the last 3 months, 98 to 154 thousand and Oncologist seemed very happy with that. Main issue is red cells as I have RARS, but Hemoglobin is in the 11 to 12 range still so once again he is pretty happy with that. I will keep your husbands experience in mind for future reference. I haven’t been light headed really it just seems to be a low grade headache that comes and goes. Might even be from not always sleeping well and its kind of like how my head feels when I have a real short sleep night, kind of groggy, but its not constant so don’t know. I really appreciate your input, I have only been dealing with this since being diagnosed in June so any advice or experience from some one who has been though it is welcome. Thanks again.

• Author
  Posts