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Centers of Excellence

This topic has 2 replies, 3 voices, and was last updated 5 years ago by mdsfound.

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April 25, 2019 at 4:34 pm #46583

Andrea Sileo
Participant

My mom was recently diagnosed with MDS del 5Q. We live in Las Vegas and are looking at UCLA, CA and the Mayo Clinic, AZ for a second opinion. Both are about a 5hr drive. Can anyone provide recommendations for doctors at either of these centers?

Thanks in advance.

Andrea

April 26, 2019 at 6:22 am #46586

Kathy Stermer
Participant

I personally feel the nurses that work with physicians are a valuable resource for who is the best physician to treat your mom. If you can get a number for the nurse coordinator or nurse triage department for the facility you’re considering, try that as a potential recommendation. They work with them everyday and know who is good and experienced. Good luck.

April 29, 2019 at 3:41 pm #46600
mdsfound
Moderator
Dear Andrea, Thank you for your email. I know this is a difficult situation for you and I would recommend that you take your mother to one of our Centers of Excellence in MDS for a second opinion. Following is a link to our Centers of Excellence worldwide https://www.mds-foundation.org/mds-centeres-of-excellence/. At UCLA, I would recommend Dr. Gary Schiller and at Mayo, Dr. Jeanne Palmer.
- This reply was modified 5 years ago by mdsfound.
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