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AL UAB Center of Excellence

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Viewing 5 posts - 1 through 5 (of 5 total)
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  • #19287
    BethW
    Member

    Does anyone on the group get treatment at the MDS Center of Excellence at UAB Hospital in Birmingham, AL?

    Thanks,
    BethW

    #19288
    SusanJ
    Member

    Hi Beth,

    We took my dad to UAB last spring for our second opinion. The specialist we saw was Dr. Foran. We loved him! The only reason that my dad is not getting treatment there is because he doesn’t want to travel that far every time he needs to see the doctor. Dr. Foran told us that daddy was getting the same treatment from his hematologist/oncologist in our hometown that Dr. Foran would give him. We got the same diagnosis at UAB that we got in our hometown, and our doctor speaks with the doctors there frequently. I highly recommend Dr. Foran. If I can be of further help to you, please let me know.Good luck!

    Susan

    #19289
    BethW
    Member

    Hi Susan,

    Thank you so much for your reply. It helped a lot. My husband’s doc is in B’ham at a different hospital and has given us a referral locally. We live in a small town so there is not a hematologist here. It will involve a much shorter drive though. His doc suggested that it is time for him to change to a local doc, but my husband trusts his current one. He tried to get home health care with home antibiotic IV but the infection down his arm got so much better the infectious disease doctor kept him over the weekend. The primary site of infection, however, is still not resolved and may involve minor surgery to remove the knot.

    We will probably have to go back up there end of this week or early next week. We are supposed to be watching for a certain sign to call. I am so sick from the week hospital stay that I can barely walk. I am homebound myself and in a lot of pain. Seems small though compared to his illness.

    His 3 sons and my son live in other states and can only make quick trips briefly but did get us back home this time, which was a tremendous help.

    Would it be okay if I e-mailed you? It would be nice to have someone in the same state to communicate with.

    Thank you so much,
    Beth

    #19290
    SusanJ
    Member

    Dear Beth,

    Of course it will be okay to email me! Please email me anytime. I know what you are going through and it helps so much to have someone to talk to. I am definitely no expert on this horrible disease, but this forum has helped me so much and there are wonderful, special people here. I look forward to hearing from you!

    #19291
    BethW
    Member

    Hi Susan,
    I haven’t had a chance to get on the computer the last couple of days and e-mail you, but have been thinking of you. My husband’s site of infection under the arm is slowly getting smaller but we called today because we felt the Infectious Disease doc should see it again because it still looks terrible. Also, I am beginning to be able to see that “tired/weak” look my husband gets when his levels after transfusions, platelets, etc. are dropping again. I’m not sure yet how accurate my observations are, but I gently persuaded him to go back and we got an appt tomorrow. He agrees now.

    How is your Dad doing this week?

    Love,
    Beth

Viewing 5 posts - 1 through 5 (of 5 total)

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