Lillian,
Two months ago I started with small swellings behind both knees. Went to see PCP about 2 weeks ago, and he noticed my right knee was swollen. Had x-rays on right knee which mostly showed osteoarthritis. Since then, both legs from the knee down have started to feel heavy and as if they are retaining fluid. If they are swollen, it is both of them. It is worse in the evening after being on my feet most of the day. My legs feel almost like weights are attached and ache. Sometimes my ankles ache too, even when I lie in bed. I don’t know if the knee and leg issues are a problem with my knee (like a tear), related to the revlimid medicine (such as deep vein thrombosis), caused by MDS, arthritis, or what. The orthopedic surgeon ordered an MRI on my knee and an ultrasound on the veins in my legs, and hopefully I’ll find out more after those tests next week. I hope your swelling goes down. I assume your legs feel heavy and sometimes tingly like mine do. Take care. -Stacey