Hi. I have been a lurker here for quite some time. Mainly trying to gather information for my mother-in-law. She is RAEB-t with greater then 30% blasts. We have pretty much gone the natural route since last August and she feels great most of the time. Still, she’s transfusion dependent and we lose about two weeks off of every transfusion. She started out 12 weeks apart and now we are at 3 weeks apart.
We are at a crossroads and trying to decide on Vidaza or not. Do you upset the apple cart when she’s feeling well right now and basically already outlived the prognosis of 4-6 months? Or do you leave well enough alone? This is really a hard decision. I have been reading everything I can about Vidaza but I still don’t feel like I have enough info to help her make this decision. I should say there’s an extraneous factor that affects our decision. She has a 47yr old daughter that she cares for (I will eventually care for her) that she has always prayed for God to let her care for her. She doesn’t want to do anything that will shorten that time. I know a lot of you have written about your vidaza experiences in different emails but I would be so grateful if you wouldn’t mind doing it again so I can compile it all and take it to her. She is a mom to me and we’ll be grateful for whatever time God gives us with her but being armed with information to pray over right now would be helpful.
Thanks for your openness here. Although I’ve been a lurker for a long time, I’ve gleaned a lot of info.
Patti
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