Dad/Trisenox update
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Hey everyone,
well, I thought I would share the latest on my dad and his treatment…
The Trisenox is apparently working! Could buy us some time afterall. The med. unfortunately brings everything down as it works though….Last week he had IV treatment for 5 days. For the next 4 weeks it will only be twice a week. Last Tuesday he had a tx. of platelets and on Thurs. they were up to 20,000. He was anemic though, 9.1, so he had a blood tx. of 2 units on Sat.. Yesterday his platelet count had dropped down to 2,000, so needless to say, he had another tx.. I am wondering if he is becoming tx. dependent, but I am hoping that it is more a result of the med… His white count was down another 2000 to 20,000…. which is good. Supposedly it won’t work for long… it is just a “bandaid”, but hopefully he will be feeling better once this round ends and we can make a memory or two.
As always, I am wishing you all the very best and hope your day is a good one.
xo,
Kathryn
Well, the past couple of days have been very difficult for my dear dad. Monday he was understandably wiped out by that evening, however it has progressively gotten worse. He slept most of the day yesterday and today, and each day he is feeling worse. Thankfully he goes to the doc. tomorrow for counts, etc….. I am hoping that he will share some of the possible side effects he has been feeling w/ the doc. or his nurse. It concerns me that he has another 3 weeks of treatment and he is already feeling so horrible. He will also have his second dose for the week tomorrow…. each dose seems to make the side effects more apparent. Is this truly leading him to being able to have some quality of life? He only has a two week break before possibly starting another round…… I hope that they consider this closely tomorrow….. I suppose the numbers will be another factor as well. I hope it is worth it….I’ve got all this nervous energy and needed to talk….. thanks for listening….
I’m sure I’ll be updating again tomorrow.
Have a lovely evening,
Kathryn
Hello everyone… first let me say that I am sorry that my posts aren’t the most positive… I do try and I tried to be at the beginning of this topic, but I seem to always get yanked back to confusion and worries. I suppose a large part of why is the stage my father is in, but I am determined to keep the positive thoughts going. It is just that roller coaster ride we keep referring to….
Well, his white counts were down a little more, but he has been bleeding a lot, even though he rec’d. platelets on Monday, so we knew his platelets were low. The doc. told him that his body is beginning to make antibodies against the new platelets… When my dad asked what would happen when the transfusions don’t work any more, he said “ask me then”…. Avoiding the answer is not a good way to respond. He will have another transfusion tomorrow. The doc. also said that the Trisenox usually takes about 3 weeks to start working…. It has only been 1 week… What does that mean? Weird huh!?! Nothing ever makes logical sense….. Could it be residual effects from the Vidaza?
Anyway, that is my update for today… I am still hopeful for that memory making time… in the meantime though, I am trying to make the best of what we have got.
I really appreciate being able to share w/ you all….. Cheaper than therapy!
xo,
Kathryn
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