Hmm… my dad’s out of ICU.
They discovered the masses that are growing around his body are actually fungus and not bad cells that they previously thought. They were so certain it was leukemia. Anyway, they are treating with ambisome and posaconazole.
Anyway, do you guys do anything about your iron store? The last time my dad checked, his store was 17,000 and that’s considered high but they said the meds will take forever to work and didn’t want to tax my father with more meds. Do you think that’s wise? Do problems arise if one does not look at their iron?
They have also started on Vidaza with a higher dose again to see if they can bring down the blasts and the pain that my father is feeling.
In my opinion, I think it is the fact that the fungus is growing along his spinal cord that may be why my father is experiencing such pains…
Do any of your experience great and excrutiating pains with your MDS?
Yesterday:
WBC – 13.5
Platelets – 8
Peripheral Blasts – 5%
Not high at all… even the doctor admits… but he doesn’t want the WBC to go out of control… they are trying to locate the pain… they say the pain is related to leukemia…but he also admits that my dad’s WBCs aren’t really climbing… the day before yesterday, his WBC was 16 with a good percentage of neutrophils.
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