Help!

[kls]

My Dad was just told that he will end his Vidaza and PXD 101. In a couple of weeks,they are going to give him a stronger chemo for two days. He will stay at the hospital for 3 1/2 weeks due to low counts. Does anyone know what chemo this would be????

[jaxem]

kls
how old is your dad? what type mds does he have?

[shirlsgirl]

How’s your Dad doing? Hang in there and stay in touch..

[kls]

My Dad is 72 with RARS. My Dad seems to be doing well, except his transfusions are weekly again. His WBC ranges from.7 to 2.0 at his best. So we worry about germs and sickness.
His last bone marrow test(3 months ago) showed that his disease had changed from 5% blasts to 1% so we thought everything was going well with the clinical trial.
Then he got sick with a UTI and was hospitalized for 12 days. A bmb was ordered and it showed “more cellularity”.???????
Now the plan is to try a more aggressive chemo and he will be in the hospital for 3 1/2 weeks so that they can monitor his blood counts.
My question is…..what chemo is given for 2 days followed by a lengthy hospital stay? Any ideas out there??? Thanks, Kristi

[Terri]

Kristi, What does the Doctor say, Our doctor sits and explains every treatment in detail and also gives us explanations on other options. He has talked to us about Heavy Chemo that would be done in the hospital Specific drugs he has not mentioned, but at this time Bob is not at that point. The blast are down and he is trying the increase in vidaza to try and kick start the marrow before we decide another route.
Sorry I am not much help. But don’t be afraid to call and ask the doctor these questions

[Russ P.]

Kristi, would you please e-mail me at:
ripoole@yahoo.com I have much to share with you since I just finished my 6th round of vidaza +PXD-101 at the U. of Chicago. My case is different but want to compare treatments.
Best wishes for your dad,
Russ

[kls]

Terri,
His Dr. called him with this bit of information. His appt is on Monday when she will go in detail about everything. I just cant stand the waiting game. Dad said he didn’t ask the name of the chemo because he thought they were still deciding on a plan for him. It sounds to me as if a plan has been made if they know he will be in the hospital for 3 1/2 weeks. Thanks for the info….It makes me feel a little better that the heavy chemo is part of the whole plan for other Drs. I guess I need to be patient until Monday!!!! Kristi

[Russ P.]

Kristi, best wishes. BTW, what is a UTI?
Hope to hear from you.
Russ

[Russ P.]

Perhaps you meant urinary tract infection. Sorry my slow brain didn’t think of that before I asked.

[Author]

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