Dear Rebecca, Chills are caused by muscles contracting and relaxing rapidly. This occurs when the body is trying to generate heat, in order to raise the body’s core temperature. This can occur when the body has low hemoglobin levels – a protein that is found in red blood cells. A common symptom of this condition is chills without a fever. Accompanying symptoms may include pale complexion, fatigue, chest pain, dizziness, shortness of breath, and headaches.
I know this is a difficult situation for you and I would recommend that you take him to one of our Centers of Excellence in MDS for a second opinion. He has options and I don’t want to see him undertreated. Following is a link to our Centers of Excellence worldwide https://www.mds-foundation.org/mds-centeres-of-excellence/. We also have a wonderful information program called the Building Blocks of Hope which we can send you via postal mail. If this is something that you would be interested in, please forward your mailing address to patientliaison@mds-foundation.org. In the meantime, you can also view this video https://www.mds-foundation.org/bboh/. I hope this information helps. If we can be of any further assistance, please do not hesitate to contact us.
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