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Is anyone out there?

This topic has 21 replies, 1 voice, and was last updated 12 years, 3 months ago by Shelly23.

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December 20, 2011 at 5:05 pm #23438

Mary4Mike
Participant

Bob, What a schedule, but it sounds like you have it under control. Thank God, for people who donate blood! Have you had to stop working or have you adjusted your life to the transfusion regimen? Mike never stopped working through this whole process, even the transplant, but, he works for a very understanding company and they have gone along with the chemo days, transfusion days, hospital days, etc. We are thankful. He is going to retire in February. That is going to be an adjustment, but hopefully a good one.

Merry Christmas to you and your family (if you celebrate it)

Mary

December 29, 2011 at 3:48 am #23445

bobweinberg
Member

Mary, Merry Christmas to you and your family. I have not fully retired, but I have changed my status at work so that I am now working about 20% of the time that I used to work. It has been tough for me giving-up so much of my work, but I have a lot less stress now about the time it takes to deal with the disease.

Thanks for the good holiday wishes. We celebrate Chanukah, which is a festival of lights just like Christmas. My wife, daughter and I spent the holiday with my mom and my siblings and their spouses. It was very pleasant. Best of luck to Mike.

Bob

January 5, 2012 at 6:15 pm #23454

AB. SALEEM
Member

Hello Bob : I regularly check this forum for new information. I have been off EXJADE 1500 mg/d due to elevated livir enzymes. Do you have any poblem taking 2500 mg/d of EXJADE ?

Ab. Saleem rars since 1995. blood tx 2 to 3 weeks. Currently on Decitibine 3 rounds.

January 25, 2012 at 1:09 pm #23476

Anneg
Member

I am still here. and i check this site on a daily bases. Really not sure hoe to work Marrowforums.org. I’ve gone on the site. But it’s harder to use. Still trying to figure it all out. I am very computer stupid!!!!!!!! thanks guys for being there, GOD BLESS

January 26, 2012 at 3:45 am #23480

bobweinberg
Member

Dear Ab Salem,

I have been very lucky with the Exjade. My renal and hepatic counts are taken every month and have been normal.

Bob

January 28, 2012 at 12:41 am #23487

Anneg
Member

Hey Mary that’s fantastic. Keep it going. All My Best God Bless

February 6, 2012 at 10:06 pm #23497

Shelly23
Member

I PROMISE TO PRAY FOR YOU.
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