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jakafi treatment

This topic has 1 reply, 2 voices, and was last updated 7 years, 9 months ago by Kathleen Kearns.

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July 2, 2016 at 10:38 am #30126

robert rogus
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Has anyone been on Jakafi (pill) treatment? It’s very expensive and I’m being considered for it.
Thank You

July 30, 2016 at 2:57 pm #30281

Kathleen Kearns
Participant

Robert,
My hematologist is suggesting I take Jakafi, as well. I have RARS T, refractory anemia with ringed sideroblasts with thrombocytosis. That mouthful means I don’t make enough red blood cells, but I make too many platelets. I’m currently on Hydroxyurea to lower the platelets, but when I’m on a dose that lowers them enough, my hemoglobin gets too low. What have you been diagnosed with?
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